I have been skipping around days on here. Have been for a few months! I think the cat and a the computer have a conspiracy against me being on here! I just about get on and either I can't open a gather email, I type a repsonse to a post and it is taking forever to post or my computer just crashes....then the biggest culprit..Mushy...me and the computer and a magnet! She sees me here ..runs over and sits on my hands and keyboard..then I start petting and singing to her...yeah...she makes me mushy!
Another big obstacle ...my Neurontin...it is wiping me out. I am up to 600 mg a day and I have been noticing I am even more exhausted and spacy then I ever was. Now is it my CFS/Fibro going into complete mode...or is it the pills. I am worried. I suffer from exhaustion as it is..this is like exhaustion on crack. Good news...back pain still here...but since I am on the larger does of Neurontin..the discomfort in my legs(and arms at times) has diminished alot. It is not gone completely and I still have those moments..but ...the length of the flare up and the times it happens have decreased...but like I said...at a price. At times I do not know which is worse.
Ok...this week ..I still went and did things! Sunday ..I did the Ghost Hunt, Monday - I went to the movies and saw The Hangover, Tuesday - I went and saw My Life in Ruins, last night I went to a paranormal lecture(last minute) to see The Paranormal Adventurers in Centereach ,NY. Tonite I won tickets to see The Proprosal..lol..and btw..I asked to go on an investigation tonite while at the lecture..had to say no!
I am trying to keep active despite the feelings I am feeling. A few times this week I did give up and had to lay down. It was so overwhelming ......I thought to myself..where was this feeling all those nights I couldn't sleep! why now..why during the day where I have activities planned!
Well ..off to clean up and call the drs for a follow up!
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Comments: 26
Sorry you have been down Donna but with that hectic schedule of yours it's no wonder that you're exhausted.
I hope that you take care of yourself and get plenty of rest!
Hugs to you!
it is hard to get rest...lol..I have tried to lay down..but the phone rings constantly
Good morning Donna,
You sure do keep busy. Take care of #1 girlfriend!! Don't clean to hard today ; )
hee hee...I didn't
I try to fight it!!
The schedule isn't always like this..this is just for this week
Good morning Donna!
hi TW
Donna-I wish you could get the meds straightened out to where they work, but don't wipe you out. You are busier than I am, and I don't have all the issues you do. Maybe you are exhausted because you do so much? When is the next trip? We thought we'd go visit my parents in Sept., but my daughter is throwing a clinker into it...going to go back and get her MBA if she can get the paperwork done. She says we will have to come in August. August in Florida...ugh.
next trip is on July 3rd to VA Beach then up to Williamsburg for a week. then I come home and head out again on the 16th for a conference.
so sorry I hope it gets better
lol..if I stop taking the meds the exhaustion might ease up a little..but then the leg issues start again!@
Donna.........kiddo, don't slow down. the more you slow down, the more you'll want to slow down. Sure, there'll be days when you have no choice, especially as you get older but keep putting that off as long as possible. My wife is taking 300mg. Neurontin 3 times daily and on the Fentanyl patch 200mg. along with Dilaudid for breakthrough.
Being a new grandmother, she lives for her 2 grandsons.........about the only thing that keeps her going these days. A couple of months ago, she tried cutting way back on the meds and after going through some withdrawal, she was faced with much higher pain levels from the Fibromyalgia and the CFL was still a major issue. She has found that if she slows down for a couple of days, it's really tough to get herself going again. When she stays active, especially with the 3yr. old and the baby, she really pays for it at the end of the day and spends a good deal of time in tears from the pain...............but she's happy. When it comes to slowing down, she figures the grand kids are only little once & she's not going to miss any of it. lol So, Donna, keep pushing yourself and don't give in to it.
-R.
thanks....I will try not to
Hello Donna! Hang in there, its bound to get better sooner or later.
hmmm..hopefully
Wow! It sounds like you are still pretty busy though!
I have more than 2000 mails in my gmail box...donna
1204!
Sorry you are in pain. I get that from time to time myself. Not fun at all. Since you asked, I never actually look at it unless someone sends me one and then I get notification (at least that kind of notification works, I hope!) in my outside mail. 17723 received messages, 16774 unread Maybe I should do something about that?
Chana...wow..holy...yikes!!!! that's alot of messages!!! I am in the thousand mark
Did you mean outside e-mail. I am so bad. I have Inbox (30389). Maybe I should really think about doing something about this.
Your life sounds BUSY! I haven't had any gather mails for a few days now... it's been weird!
I have!!
I've been away for a while, too. Now, I'm coveredup with e-mail. I hope you feel better. Itook Lyrica for a while. It's like Neurotin. it made me too slow and I had trouble working, so I quit
I have 0 emails in my yahoo email. Which is rare for me!
I have 95 emails on gather.