Unintentional Bulemia

I'm sorry. I hope you feel better soon

This is awful. Have you considered going to some big hospital like the Mayo Clinic or some place like that? Is there any big place like that anywhere near you?

I'm so sorry! I hope you get this figured out soon.

Elizabeth-The doctors I'm with now are through U of M. That's MI's Mayo Clinic. That would be one of the reasons I have to wait until June to get the first of who knows how many tests.

I went through this when I was going through alot of stress, it is very bad. Hope they finfd the problem.

Is there anything around your home that is making you sick? Sprays, fluids, cleaners? Have you checked on the Internet? If you outline your symptoms, you may find an answer there. Sounds to me like something to do with the gallbladder, but that is only a guess. I'm surprised your doctors wouldn't order upper GI or Lower GI series? Even X-rays.

I am so sorry. Hope you get to feeling better real soon.

whoa. how long has this been going on?

try Googling WebMd, maybe you already have. I've found them very helpful in the past.

Apparently, I didn't make this clear, that's my fault. I KNOW what's wrong, so do the doctors, all three of them. I have what is called Sphincter of Oddi Disorder. It means that the sphincter in my common bile duct is clamping down when the bile comes and getting backed up. It's like having a gallbladder attack, but I don't have a gallbladder anymore. In fact it's one of the complications that can happen after having your gallbladder removed.
The problem is that the first one disappeared without fixing it.
The second one didn't realize that the first one DIDN'T fix it. She misunderstood what I was trying to tell her and didn't speak English very well. She heard me say I'd had an ERCP done, which is the procedure they do to cut the shincter, but not the part where the first doctor didn't actually cut it. He only put a stent in my pancreas, which they do AFTER cutting it to cut down on the chance of Pancreatitis.
The third one wants to do their own tests to confirm what is wrong in their own mind. Even though if it were acute pancreatitis, things would have been coming back abnormal all along. In fact, the fact that things HAVEN'T been coming back abnormal is the BIGGEST indicator that it's SOD.
THIS is where the true frustration comes from. I know what is wrong, and so do they, but each doctor who's willing to even TRY to help me has to do their version of whatever test to confirm the diagnosis.

Please find help, now.

Oh!

Geez, I had my gall bladder removed (gall stones) five years ago. I had no idea there could be complications later.

thanks for sharing

I hope you find someone to help soon! I had my gallbladder taken out in High School (youngest patient they had ever had at the hospital for that).

Debra-Mine was "sluggish" and infected. For you, it would more likely be caused by a stone which is MUCH easier for them to discover and fix.

Are you pregnant?

I do hope you're feeling better soon and hopefully the doctors can come to some consensus so your treatment can begin.

I wrote a second article that clarifies better. Unintentional Bulemia Part II.

No, DEFINATELY not pregnant.

Thank you for posting this to the Gimme 10!!! Group


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Well I hope that you are able to convince the doctors soon. I'm sure you must be miserable.

As the official Dear Ol' Dad in this part of Elizabeth's Soap Opera, I gotta tell you... watching and being unable to really DO anything is maddening.

I was up at 5am this morning, not able to sleep, not feeling well, having an anxiety attack and Nick decided that he's going to talk to the Dr on Monday. He called the "fellow on call" at the hospital and was told that he could call the DR and demand an ER test be done so I don't have to wait until June.

everything is going to be ok

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