What if anything do you know about fibromyalgia

I wish I could help you.

Don't know anything about it, wish I could help you too.

No idea. I'm going through the same thing with my legs and ankles - and feet. They are the worst right now, everything else takes a backseat. I used to be able to take a hot bath to help, and pop a lot of Tylenol to take the edge off. My body stopped responding to Tylenol, and now I take Darvocet, which helps me sleep. Otherwise I'm tossing and turning it's so bad.

I straightened my hair last night and was standing for an hour in front of the bathroom mirror. That was enough to make everything 10 times worse. And then the nightmares when I finally DO get to sleep . . .

Let me know if they give you anything that really works, or if you find a way to manage it.

What do you take 75 mg. of?

Oh Carol,
I put all of the information on the article about your Spring garden. I guarantee you if you follow up on it, you shall be very, very happy!

I did not see this article. Sorry.

What I know is that it is a debilitating disease that may put you out of business, make you depressed, because you cannot do anything, for you feel so worn out, and people think they must live with it, without much hope, but drugs. But this is not true. Check your other article.

Carol, I am so sorry for you. I don't know much about the disease. I know Marilyn, one of my Gather friends has it. I will send her an e-mail and ask her to contact you.

Hi Carol ~ You're always so "up" on Gather, I had no idea you were in fibro pain. I have it as well, and I have one website that I think is pretty good. Go HERE to read about it. Mine hasn't been "officially" diagnosed, but several of my doctors believe I have it. Some say it can't really be diagnosed, just "identified" via the symptoms and pressure points that hurt. I have more problems with the chronic fatigue side of it, although I do have pain, but it's confusing, as I've been in multiple car accidents that have really screwed up my neck and middle-back...it's such a long story...as I'm sure yours is as well. I hope this website helps you, Carol! Take care and be kind to yourself! ~ Nancy

A friend of mine has it. I know she spends a lot of time in her hot tub and takes meds of some kind, also gets massages.

A roomate of mine had it in the 80s. I didn't know there was anything to do about it. She was just worried that it might make it harder to find breast cancer lumps if they should occur.

I lived with someone who had this disease. She was so hooked on the drugs given for it, she could do little for herself. The one perscription I found she was taken over the amount perscribe was Sonoma (I think thats the right spelling for it) Although I suspected she was over indulging in her perscriptions or at least one of them, it wasn't till some time later the truth came out, and was revealed to me. She herself battled at times the fatigue. Sometimes she would fall asleep in mid-sentence.
From my understanding, it varies with each individual. But does progress, and goes in stages, in time. Most are able from my obsevation (I have met a few with it) to lead realitivily normal lives, providing they take their medications in the proper doses, and not go over the limits of what they are cabable of doing.
Much has been discovered about the disease, since it was actually given a name. I hope you research it, so as to live a better and more fufilling life.

I bet by now there's all sort of plans !!!

Oops. I just googled it and it sounds like something else. She had something that sounded like that - that was scar-like tissue in the breasts. I wonder what that was.

Oh well, just consider this Gather points - ha ha.

Carol, I was dx with this many years ago but I also have a rare autoimmune disease that is much more serious then the fibro that I have to be careful. Anyway, back when I was dx they didn't know as much about it and I hear now that they classify it as autoimmune (which they didn't before). I'm not really sure.
If you contact your local Arthritis Foundation they should be able to help direct you. I know they (or at least used to) hold classes/support groups and stuff about it. You might find that helpful. You gave doses of your meds but didn't say what meds you take.

Peter, I think you are thinking of fibrocystic breast disease.. totally different thing.

Dee she was taking Soma - not the right meds for it.

Carol - I have fibromyalgia - when I'm having a bad bout - it seems to spike when the barometric pressure increases - I take Lyrica twice a day. I don't need to take them everyday. Tylenol can cause kidney problems if taken regularly, ask your doctor about Lyrica - it works just fine.

Thank you Tiffanie C. Aren't you ALL glad I'm NOT a doctor??? !!!!

Aaaaaahhhhhhhhh !!!!

Fibromyalgia is a tough one, Carol. I was diagnosed in 2003 and I'm still learning every day - what I don't know, what the docs don't know, studies that have been done.

Here's something I wrote a while back. I also have quite a few articles about specific symptoms and pains. It's a New Day!

I hope you find the relief you need.
I really don't know anything about it.

The prescription drug I have for pain doesn't really take the pain away...just makes me not care.

I have heard some anti-anxiety/ antidepressant medications help. I researched it awhile ago and saw that listed in some places. Some doctors say diet and exercise only. You may want to ask about medication if the pain is really bad.

Thanks for sharing.

Thanks to all. I am taking Lyrica. That's the 75mg. My doctor thinks I may need up to 400mg of Lyric. He said I have all the points of fibromyalgia and officially calls it, polymyalgia. I never heard of the poly. I stay up because I won't let this beat me. Thanks for the info, and I'm going to check out the info you guys gave me. Sorry my King, you did an OOpsie!

Well, Carol.. barring diet, exercise..walking.. a lot of stammina.. I don't know what to say. I have a friend- who I used to walk and exercise with- she had fibromylagia.. and she had it bad.. she found, the exercise, diet, and walking daily, helped. There still was alot of pain however. I am just glad that ist recognized nowadays.. for so long- doctors really didn't take it seriously.. learning to relieve stress- also would probably help too. These preventatives - really are important. They might now stop the disease process.. but they may slow down the flare ups.

Take it easy OK?

Wolfie

I am seeing a pain specialist and have another MRI on Monday.

I find I hardly remember that I'm supposed to have it as long as I hike a lot in nature, do yoga, and eat fairly healthy...a lot organic. I also use castor oil packs sometimes. I sometimes feel tired from doing all this stuff; but the way I feel when I don't do it is lots worse. Fasting for short periods helped immensely in the beginning; but I don't seem to have the fortitude for that anymore.

I do not know much about it.
I could sum it up with, its a disease that is painful, sometimes very much so.
It does not sound fun. I have heard Lyrica (prescription) may work for it.
Hope you get some relief somehow!

I don't know much about it. :HUGS: Thoughts and prayers going your way!

Carol, talk to Faith (the former guide with the stars in her name). She has suffered with this for several years and is extremely educated and knowledgeable on the subject. I feel certain she'd be more than eager to help you in any way she can.

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Carol, I'm so sorry that you have Fibromyalgia. I was relieved when I found out that there was something actually wrong!! I take Lyrica 150 twice a day. It may have helped alittle. I have it so severe that my specialist told me I would never be able to hold a job. He's right. It gets so bad, that I am so stiff I can't walk. They don't know too much about Fibromyalgia. MY husband's doctor told me that if you don't exercise, you hurt, if you exercise too much you hurt. He's right. You have to work to find the happy medium. Your attitude has been sooo great. I would never have known there was anything wrong. Hang in there. If you ever need to talk or vent, give me an email!!

Carol - I also had polymyalgia - I got them both from taking interferon for my Hep C.

You have my deepest blessings to help you through it. Fibro is bad enough, poly is a nightmare. My rheumologist put me on steroids for two years and it's now gone.

I went in after it is was gone and said "Okay, we took care of that, now how do I get rid of the Fibro" he then told me that the fibro doesn't respond to any meds to cure it, you learn to live with it.

The fibro along with my arthritis is painful but still not as bad as having the poly on top of it. I do take 100 mg of Lyrica a day when the pain is bad. The capsules are 50 mg each so the low dosage does it for the fibro.

Please talk to your doctor about a course of steroids for the poly. Taking steroids is no joke, but for me anything was better than the poly.

Blessings girl - I feel for you.

I'm sorry you have this. My mom has fibromyalgia and has lots of pain.

I was diagnose with Fibromyalgia and Myofasical Pain Syndrome in 2001. At 41, These illnesses and a couple other health issues effectively ended my working career. It seems everyone is different in regards to what treatment options they respond well too. The only thing I can suggest is doing internet searches and read up on the available information.