I am steaming mad as I watched the news on the Ashley case. As a mother of a special needs child, I was also told my daughter would not talk or function normally in the world. I was told she would be catatonic and withdrawn. I worked hard to overcome and prove the medical establishment wrong. My daughter is now walking and starting to talk and functioning in this mainstream world. Every time I pass the doctor at the hospital who told me the initial diagnosis of doom. All he can do is say , " I am suprised, and this almost never happens." One day he passed me and told me I am sorry and glad you didn't believe me.
Raun Kaufman, son of Barry Neil Kaufman, founder of the Son-Rise Institute, had a initial diagnosis of doom, but they worked with their son. In 1996, I met Raun at a parents intensive workshop in Illinois , where his sister Bryn and her husband, taught parents important strategies on how to mainstream their children using the Son Rise Program. Raun I believe was near 31 years of age at that time and a successful graduate of a University. When I shook his hand and he said hello to me , I cried because I knew if his parents could do it, So could I.
Think about it. Wilma Rudolph's mother was told by doctors that her daughter would never walk. If she had listened , Wilma would have never pioneered through the Olympics and won medals for her excellence in athletic ability.
Why are parents such as Ashleys so quick to believe a bad prognosis, so quickly and take such harsh action as a result?
I ask myself, Why didn't they seek out other experts. Other forms of medicine.
To remove a child's right to grow up by removing her estrogen and giving her a hysterectomy to make it easy on them to care for her , is nothing short of just evil.
Do they expect to live out her life expectancy? What would this poor girl do if they predeceased her? I have heard more from the father on this but not much from the mother in the media news. He set up a website to explain his plight. I understand his plight. I also feel he has been extremely selfish and self serving to make his caring for her a convenience. I cannot imagine a mother, no less a woman, agreeing to remove her child's right to be a woman.
I feel, had Ashley been a boy, her dad would of thought twice about removing his son's manhood. I wonder if he has pondered if the shoes were on the other foot, would he wish to have his manhood removed from him?
I wonder where were the child advocacy groups in this case? Maybe they sre still tied up preventing Madonna from adopting a child, this is so much more important than that. Maybe Ashley is not enough of a celebrity story and the advocacy groups need a more public figure to go after.
I also believe her story in the news has made her a target for any pervert within an earshot. Imagine a perfect target, a child who cannot speak , helpless, and now with a hysterectomy. All kinds of cruel thoughts come to my mind, knowing how horrible this world can be and the many sickos who prey upon children.
I pray for her each day. I pray that despite her parents ignorance that she overcomes and is able to have some form of recovery and improvement.
I am sorry I seem harsh about this. I believe I have the right to. Only a parent of a disabled child knows this plight well. And yes we all fear how this world will treat our children as they grow. Now, we are shown by this case, that if you have enough decision making power, you can snip your child to make your life easy.
I am haunted by this case. I pray that no other parent makes such an irrational decision to remove their child's natural God given right to live and grow.


Comments: 11
Is it less evil to leave her body alone and then have to institutionalize her at an early age because they are unable to care for her?
Joanne, I think this merits more discussion and I am making it a feature on my group, THE PLACE TO VENT AND JUST TALK ABOUT THINGS.
or
http://talkboutit.gather.com/
Blessings to you for what you've been through and also your triumph over medical minds.
Marilyn
... but anyways my prayers for that child! I hope what little is left of her lives in peace!
I wish to thank James, and I will get around to reading your article this weekend.
I wish to thank Marilyn for being on the same page with me. I am totally in agreement with you.
Shruthi, as always, I can always depend on you to shed a ray of light and give good input. Thank you all !
My son is ADHD and ODD... we did not jump on medication, but he became so uncontrollable, we had to resort to medication.. we tried many different counseling sessions and nothing seemed to work... yes, diet could play a part in helping him get better, but we are on a limited income and even to change the entire famiies diet from buying cheap stuff is difficult...
When things like this come up, I really wish we could hear the entire story instead of hearing things one sided as journalists usually do.
Also, My daughter took 8 years before she said her first word. My daughter was 10 years old when she first learned to use the bathroom on her own. There are alot of milestones she accomplished that doctors said would never happen. It took her longer but she accomplished them. I was also told she would never have the ability to understand how to catch a ball, well also at age nine she finalyy learned and she plays basketball and shoots hoops , something again doctors said would never happen.
You have to invest the time to contribute to wellness. My opinion is they are further disabling her then trying to work with her to improve.
Yes it is a matter of believing she could. Let me put it to you this way Kathleen. A very long time ago a man named Edison contemplated placing a filament into a tube to create light. The newspapers balked and the major scientific minds of his time said ,"What are people going to do ? Run a line to everyones house?"
Guess what I am using to e-mail you today ?
Sometimes when things look impossible, it doesn't necessarily mean that it really is.
Yes nine years, is a long time, but from my own personal experience it did not deter me, nor many other parents of disabled children to stop trying, or having faith that modern medicine or treatment breakthroughs would occur with time. If I had given up after nine years, I wouldn't be witnessing my beautiful child walking and interacting with the world. I would have left her disabled with no hope, just because a doctor who evaluated said she would never have any quality of life.