As the winter months are approaching, and I am having my first reactions to the chills, I am wondering how many out there are fellow/fellowette Reynaud sufferers. I have only had this syndrome since last year, and at that time, had heard it was fairly rare, and more common among women, much more rare in men. Yet, I moved into a new office this past July, and low and behold, a man I work with also suffers from this (so I have someone to support me at the thermostat!) And, recently, I have heard of more people with Reynaud's, but they've all been male. Anyone else out there?
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Comments: 17
(so I have someone to support me at the thermostat!) !!
are you in oklahoma city? I lived there for 1 year close to NW-Expressway& I miss it sooooooooooooo much.
do you have any photos of OKC to send me, I just want to see it again.
As for Rayneud's phenomenon, I have been in the medical field for 13 years & havnt seen 1 single man.My aunt used to have it.
Did you find out if your Rayneud's phenomenon is a primary one(not associated with other diseases) or its just the first symptome of a disease like scleroderma?
My aunt had Rayneuds for several years before she started to show signs of scleroderma.She died of lung cancer (which is a direct complication of scleroderma).
I heared that NWXpway had changed since 2004 so any new photo will be great.
Are you still using ergotamine? did you try Topamax for prophylaxis of migraine?
Thank you
I actually have to head up past NW Exp. & Portland area tomorrow for an appointment, I'll see if I can get a pic or two -- just can't remember apartments there -- Circuit City, Macaroni Grill... We'll see. When did you leave?
Topamax may be used for seizure &migraine too..
I must say that Topamax is a weak anti-seizure medication, doubtful it will control seizure as a monotherapy.
"Keppra" is a better choice.
Debra, I think it's funny you're one of the first I connected with here, and you share something that's rather rare. Actually, it's not funny, it is miserable, but a coincidence. I wonder what kind of things you go thru with your hands -- this time of year, I make a salad at night, and just can't make it thru to the end without losing my fingers. I use to stop often and run hot water over them, but I gave up on that and just go thru numb, then work on getting the feeling back.
You might want to see a rheumatologist and be checked for some auto-immune diseases as it is common with them.