Here is the list of diagnoses I have received since 1998 (just as I was turning 20 years old).Â Many are complications of crohn's or the medications I am taking (such as diabetes, high blood pressure, and osteoporosis).Â The picture in the pink frame is me at 18.
Â anklosying spondylitis - AS Info, again great resource here
osteoporosis - Osteo
acute renal (kidney) failureÂ -Â KidneysÂ
restless leg syndrome - RLS
anemia of chronic illnessÂ - Anemia
carpel/tarsel tunnel syndrome - Carpel Tunnel
migraines - Migraine info
asthma - Asthma
chronic bronchitis - Bronchitis
I have constant back neck and shoulder pain (from a car wreck in 01). I have already had back surgery (with rods) and a complete shoulder reconstruction.Â
I have been dx'd with Gout yet, but I was told by my general practitioner to ask Mayo to check for this, as I have been having elevated uricÂ acid levels and also finger/joint pain.Â This hasÂ probably already been done, so she didn't want to do extra lab work.Â If gout is dx'd, this would be 5 forms of arthritis.
I have nerve damage from either high fever as a child (had pnuemonia and measles before 13 months old).Â I carried temps over 105 several times.Â Often prolonged fevers cause hearing damage.Â My mother discovered the loss around the age of 2 to 2 1/2.
Haven't worn any since 9th grade.Â I had to have them during my school years, but as soon as I homeschooled and then went on to college, I quit.Â I could sit where I wanted in college and made use of reading lips.Â But now my family is noticing a worsing and also confusion of sounds.Â I hear things completely different from what people are saying and often answer back with completely off-topic answers from trying to piece together what I hear and and fill in the blanks.
And how could I forget I have profound hearing loss in both ears. 75% in my left and 50% in my right.Â If we can get the money or some financial assistance I am going to get hearing aids (the set that I need are behind the ear with a small tube that goes in the ear canal).Â They cost around $2000 each.Â I have a ear pressure problem that doesn't allow me to wear the in the canal style (which is a bit cheaper) and also the severity of the loss (and type of loss) is best treated with behind the ear style.Â