We are officially 5/7 of the way through radiation treatment. I honestly cannot wait for this week to be over. It will mark the end of chemo and we will be past the 80% point of radiation. Hopefully all this is doing its job and killing the tumors.
Everyone asks how things are going and there is no real answer to give. It appears that the tumors are shrinking, the swelling in Sean's neck is smaller. But until all the treatments are done, then they wait a bit (because it continues to do its thing for a while even when treatments are done) and then they will do another PET scan. So, we won't know till around Thanksgiving what the next step will be.
The ultimate hope is that the tumors are completely gone. The more likely outcome is that they are reduced considerable but he will need another surgery to remove what is left. And then he will still have to go back every 6 months to be checked for any re-occurrences of tumors.
Right now we are just living day by day trying to deal with the side effects of radiation and chemotherapy.















Comments: 51
Glad to hear the chemo will be over this week.
We're asking, "Are you still holding up? Are you more filled with dread or hope today? (Tomorrow is not today and is often unrelated to today other than it becomes today.) Have you made it through a whole day without having a hissy fit when something didn't deserve one or without breaking into tears when someone said, 'Your hair looks good?' Is there a heaviness in your heart so deep that 20,000 sighs cannot remove it, but you're willing to go for that 20,001 sigh, just in case you can finally release it? Did the effing meat not thaw right in time for dinner or, worse yet, you forgot to thaw any and you have absolutely no idea why that one small, tiny, insignificant thing made you so damn angry you couldn't see right? Or...did you see a flower growing out of a crack in the sidewalk or an honest-to-goodness rainbow appear or one of your kids laughed, as if God himself were reminding you he is still in control and all is right with the world?"
That's what most of us are asking when we ask, "How's it going?"
Life may feel like one big trip to and from work and to and from treatment, but that's just the motions. The reality is, "How's it going?"
The answers are...someone dared to tell me my hair looked good, the meat thawed right, the stars were out all over the place, I stubbed my toe...or whatever happened today that only seems insignificant to anyone really asking what you thought we were asking. It's all significant, and this is your chance to let 'er lose. ;)
After all, not one of us is running to gossip about you to your pastor. ;)
people actually ask if we know how the treatments are going though, if the tumors have shrunk and such...and that there is no way of knowing for a while yet...
today, for me, has been a pretty good day...while for Sean things are getting progressively worse with the side effects...
Cisplatin Side Effects:
Important things to remember about Cisplatin side effects:
Most people do not experience all of the Cisplatin side effects listed.
Cisplatin side effects are often predictable in terms of their onset and duration.
Cisplatin side effects are almost always reversible and will go away after treatment is complete.
There are many options to help minimize or prevent Cisplatin side effects.
There is no relationship between the presence or severity of Cisplatin side effects and the effectiveness of Cisplatin.
The Cisplatin side effects and their severity depend on how much Cisplatin is given. In other words, high doses may produce more severe side effects.
Hugs and prayers.
Look at it this way too-- 10 ONLY 10 more radiation treatments and he's done with those. ONE, only ONE, chemo treatment and he's done.
Love and Prayers,
Mare~
we are definitely on the final count down :)
I know I need a break...have three weeks till school starts here though...
though Aria being two years older and wiser and going off to college should know better ;)
Sorry Kate I get you confused with my goddaugter that spells it with an "h".
I can be patient, but these circumstances make it difficult