by Katryn D.
Member since:
August 20, 2008

Adventures in Chemo (*update)

July 22, 2011 05:01 PM UTC (Updated: July 22, 2011 10:21 PM UTC)
views: 0 | 10 people recommend this | comments: 42

As we talked with our pastor this afternoon I decided on a title for the book "Adventures in Chemo".

So, Sean was smart and went to the doctor on Monday for the 'script for his one med since it took a week to fill last time.  He was told they were administering a different type of this med through his IV and wouldn't have to take the pills at home.

So...our week went really well with his dad and step-mom visiting.  A lot got done around the house.  Then yesterday we had the great chemo SNAFU.

This morning things were still not going very well.  We found out that they switched back to him taking the original pills and they expected us to get it filled in one day, because the hospital pharmacy could do it.  Well we called the store and found out it couldn't be filled till Tuesday so we went to the hospital pharmacy.  Instead of a $20 copay it was a $200 copay.  Well there was no way we could cover that.

In steps the hospital again.  They contacted the American Cancer Society.  So, the $300 grant for transportation was used for the meds.  We now have $100 for transportation since $200 went to get Sean the meds he needs for tomorrow and Sunday.

Luckily the doctor gave me the 'script for the next round of chemo. :)

I am hoping by the time August 11th comes around, Sean's third and final chemotherapy, it finally goes smoothly.  As one of the nurses said 3rd times the charm.  I really hope so.

I am home to grab a bite for dinner and then head back.  Sean should be released around 9pm or 10pm since they were able to start things early this morning.

*update:

Sean is spending tonight in the hospital because he spiked a fever - 102.3 and his blood pressure went really low.  They are giving him Tylenol and antibiotics and running some blood samples to make sure it is nothing serious.  Hopefully all will be fine and his fever breaks by morning and I will get to take him home tomorrow

Comments: 42

Cathie M. Jul 22, 2011, 5:09pm UTC
We are praying for Sean and hoping things will go well.
Katryn D. Jul 22, 2011, 10:26pm UTC
thank you, he is spending another night because he spiked a fever and his blood pressure went quite low
Diane Huizenga Jul 22, 2011, 6:15pm UTC
I hope the meds keeps his stomach in good condition, good luck to him.
Katryn D. Jul 22, 2011, 10:26pm UTC
he has thrown up so, now the issue is a fever and low blood pressure though...he is spending tonight in the hospital
Larry H. Jul 22, 2011, 6:39pm UTC
HOPE THE MED HELP THANKS FOR THE UP DATE.
Shaunee C. Jul 22, 2011, 6:54pm UTC
I am praying fore Sean I hope he gets well and feeling better
Katryn D. Jul 22, 2011, 10:26pm UTC
thank you, he is spending another night because he spiked a fever and his blood pressure went quite low
Nana to Seven Cutiepies Jul 22, 2011, 7:31pm UTC
Well, after all of this I hope Sean wasn't all stressed out and that he feels better this time around. As always, our prayers are with all of you.
Katryn D. Jul 22, 2011, 10:27pm UTC
thank you, he is spending another night because he spiked a fever and his blood pressure went quite low
Hoping the meds work REALLY well and that this will be the last of the things that "isn't" on schedule. Think...after this chemo treatment, he's 2/3's of the way done.

Katryn, hang in there...this is hard on both of you, but so worth it to be cancer-free.

Hugs and Prayers,
Mar~
Katryn D. Jul 22, 2011, 10:27pm UTC
over 1/3 with radiation and 2/3 with chemo...getting to the home stretch ;)
Heather M. Jul 22, 2011, 9:16pm UTC
Good luck to Sean.

I think that "Adventures in Chemo" is a good title for the book.
Katryn D. Jul 22, 2011, 10:28pm UTC
yeah...that's pretty much what I thought ;)
Janet "Jax" B. Jul 22, 2011, 9:55pm UTC
I hope Sean doesn't feel too bad after this round of chemo.....
Katryn D. Jul 22, 2011, 10:28pm UTC
he's been throwing up some but the main concern is that he has now spiked a fever and his blood pressure dropped
Janet "Jax" B. Jul 23, 2011, 11:49pm UTC
Oh no....hope everything is alright....(calls for some special prayers)
Amber C. Jul 22, 2011, 10:31pm UTC
Still praying!
Katryn D. Jul 23, 2011, 11:26am UTC
thank you
Back to see if there was an update - and there was... ongoing prayers for Sean and your family. Try to think of it this way.... he's in the best place he can be in for being sick, where better than a hospital?

Hugs and Prayers..
Katryn D. Jul 23, 2011, 11:26am UTC
I know he is being cared for...but it is difficult...thank you for the prayers
Renee (Pres of Baby James Foundation) ~. Jul 22, 2011, 10:57pm UTC
I hate hearing he is in the hospital, praying his temp goes down and blood pressure gets regulated. I know there is no place like home. Sure hope his next round of cemo goes well for him as well
Katryn D. Jul 23, 2011, 11:27am UTC
I'm nervous about the next round since this one is going so badly...and not just the whole goof ups but how Sean is feeling and such
That I also understand and with the things that've happened with his reactions to this, his next-to-last round of chemo, it'll also give the hospital and his Dr's, the knowledge so that they can hopefully "prevent" it from happening again. Hold that thought close, because whatever the Dr's learn from Sean's getting sick from this chemo treatment, tells them what to give him so that hopefully, he won't get the same results from the next AND FINAL one.
Connie C. Jul 22, 2011, 11:02pm UTC
Katryn,

I know this is not only hard on your husband but your entire family. I know you are helping others by sharing though. Stay strong and it is ok to cry too. :)

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Have a wonderful weekend!
Katryn D. Jul 23, 2011, 7:48am UTC
thank you Connie :)

I am sure I will find the time throughout the week since I am on vacation, as long as Sean isn't seriously ill
Patricia Gilliam Jul 22, 2011, 11:16pm UTC
Praying for you and your family, Katryn.
JOHN BECK Jul 22, 2011, 11:38pm UTC
As am I.
Katryn D. Jul 23, 2011, 7:47am UTC
thank you both
Darlene B. Jul 23, 2011, 12:20am UTC
Katryn, I, too pray for you and Sean that God continue to give you stregth in the midst of a good recovery and return home.
Katryn D. Jul 23, 2011, 7:48am UTC
thank you
Heather E. Jul 23, 2011, 12:37am UTC
"sigh" I hope, and pray that things will improve. You could almost see the pill snafu coming.
Katryn D. Jul 23, 2011, 7:49am UTC
yeah, we really rather did...hence why we went in early in the week for the 'script...but now we have the one for the next time so I will get it filled :)
Veronica Hosking Jul 23, 2011, 1:14am UTC
Not good Please keep us updated.
Katryn D. Jul 23, 2011, 7:47am UTC
really not good because Sean wasn't even that upset about having to stay another night so you know he isn't feeling well...though he did apologize to me about it...as if I care, I'd rather know they are taking care of him then bring him home sick...
Pamela Marks Jul 23, 2011, 1:36am UTC
Prayers out to Sean that the fever subsides hope it isn't anything too serious. Hugs to you to
Katryn D. Jul 23, 2011, 7:49am UTC
thank you
Pamela Marks Nov 26, 2011, 10:31pm UTC
you are welcome
Lori A Jul 23, 2011, 11:11am UTC
Praying for you and your family
Katryn D. Jul 23, 2011, 11:27am UTC
thank you
Nana to Seven Cutiepies Jul 23, 2011, 11:20am UTC
Stopped back to see if there was anything new. So sorry to hear that Sean has a fever and low Blood pressure. Hope they can get him feeling better quickly.

Hugs and prayers from our house to yours.
Katryn D. Jul 23, 2011, 11:28am UTC
it's going to be tonight in the hospital as well and lots of tests today to make sure it isn't anything serious
Angela A. Jul 23, 2011, 6:34pm UTC
I hope they can find what it wrong, and get him going really soon

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