Most of you have asked what was going on with Rob many times over the past few months. I was hesitant to give the full story, because I kept thinking that Rob would return to Gather and I didn't know how much he would want to reveal.
The day after his last post, Rob fell in his apartment and he was not able to get to a phone. I didn't get the idea anything was wrong for a few days. Rob had been moody of late and got mad at me when I caught him lying about hiding out in his apartment during Park Ave Fest, so I thought he was just ignoring me. I had a nagging feeling that something was wrong, but Rob could be stubborn. Finally, my instincts won out over concerns for Rob's privacy and I found him on the floor.
He was rushed to the emergency room by ambulance, but other than dehydration they found no injuries or major problems. Rob was admitted to the hospital to get some fluids, get his blood pressure under control and make sure he was walking ok after the fall. At this point, we were expecting he would be a week or so in the hospital.
During that first week in the hospital, it became apparent that the problem was worse that we thought. The doctors were concerned about Rob's level of depression and his refusal to do any physical therapy. After a couple weeks without success, we convinced Rob to go to a rehab facility for some more intensive therapy.
Unfortunately, Rob did not do any better while he was at the rehab and ended up back in the hospital after refusing to take any blood pressure meds for almost a week. This time the hospital doctors were deeply concerned about Rob's ability to make decisions about his welfare. After some consultations, they determined that as his health care proxy I would need to make medical decisions for Rob.
As the next couple weeks passed with no improvement in Rob's depression or physical therapy, it became less and less likely that Rob would be ready to go home before he would have to go into a long term care situation. I was deeply concerned that if that were to happen Rob would never be able to get back out on his own again.
At the same time, the doctors and I began to realize that Rob was having some difficulty with remembering and understanding concepts from day to day. Rob was good at hiding it unless you asked him to focus on something from one day to the next. They determined that it was due to the diabetes which Rob has struggled with for the last few years.
With Rob's potential for rehab slim, none of the rehab facilities were willing to give him a bed. Meanwhile, the hospital couldn't keep him because he wasn't acutely ill. With the help of a social work supervisor I managed to get Rob a rehab bed with the understanding that he would have to be re-evaluated in 30 days, with the potential to be placed in long term care.
Things were not looking good for Rob's chances of going home. His work with physical therapy was inconsistent and his memory issues seemed more and more evident. Although I didn't tell him, I was doubtful that he would get to go home. I was very worried about what this would do to Rob emotionally.
The last thing on my mind was that Rob would die. To say I was shocked when I got the call is an understatement. I feel numb and sick all at the same time. It made sense when they explained that his heart just gave out. His body had been through a lot and no matter how much we nagged him, Rob didn't help.
Despite my personal feelings, I know that this was probably better for Rob. He went through a lot in the past few years and I think he was tired of fighting. I know that he would not have wanted to live out his life in a nursing home. I can only hope that Rob is finally at peace. He didn't have a lot of it in his life.
Update: Later tonight I will be posting Rob's self written memorial. It is two pages long, hand-written single spaced so I couldn't post it in the newspaper. Besides, I figured his Gather friends would enjoy it more anyway.


Comments: 103
I know the pain you are feeling right now, it's never easy losing someone that you love. I hope it's easier on them up there than it is on us down here.
RIP Rob.
I met Rob, through you, his best friend and came to know him because of you. You've had so very much to deal with yourself, lately, my prayers not only go out to Rob and his family, but to you.
Marilyn
Thank you.
sending prayers and hugs
He will be missed
he will be missed by me and many
thanks Scott for being such a good friend to Rob~
I'm so sorry for the loss of your friend. May his soul be at peace now.
to get his sugar and blood pressure under control, but he sounded in good spirits. I tried many times to get him back on the phone, perhaps he was in rehab, but they gave me his room number, I loved him you know, I will miss his emails and his writing and I will just plain miss my dance partner, Bless you Scott, I know God will Bless Rob, he was a really good guy, and so full of life while he had it, I think knowing him, this might have been his choice, love, Elsie
Again thank you for writing this and my deepest sympathies at this time.
I am blinded by tears for him right now. I wonder if he had had a laptop at the hospital is we could have kept his spirits up. He went through so much in his short life and was so brave about all the health problems that piled up on him. I liked him so much and will miss him and remember him always. I hope he is in a happier circumstance now. I believe in reincarnation and I hope he gets a better life next time.
We had shared emails on occasion.
So many times of late I have come onto Gather, only to learn of someone's death ( Heidi, Chana, others.) Now this.
But we are a community--and as in all types of communities in life , death comes. So sad when it does.
We have lost too many here this year . But, as I say-- this happens in communities.
And Gather is one of my favorite communities.
respectfully, Lonnie Ray Fowler, The Southern SongSmith
The "system" really DID fail Rob, of that I am sure. His pitiful food stamp allowance wasn't anywhere near what he needed to buy the special foods he needs to keep with his diabetic regimen. He couldn't get healthy foods. I located the Angel Food Ministry in Rochester, but despite his physical impairment (only having one leg!) and living in a walk-up apartment, they wouldn't make a special exception to deliver it to him. I had him go on Amazon and pick out some foods that he could eat, that would be somewhat healthy and not make his diabetes worse. One of the things he picked out was Kellogg's Corn Flakes! All the while he worried about how he was going to get the packages up to his apartment. Fortunatey the UPS man buzzed his apartment and carried it up to him.
Scott, you mentioned that Rob didn't have much peace in his life. Like you I hope that he is at peace now. But there was so much that he was deprived of, that no human being, and certainly not in a country as rich as the USA should have to do without.
Thank you for being there for him, Scott. It means a lot to me to know that in his final weeks that he was not alone.
Rob was a dear and loyal friend to me. We spent many a time giggling over the phone about life and the emails that he used to send me. I will miss him very much as he was an inspiration to me and always so upbeat.
Suffice it to say that I would have never guessed Rob to be so depressed. I guess that's what upset me the most that I didn't know this and somehow I feel as I failed him.
I am so sorry that you have lost your best friend. There was never a time when he didn't have wonderful things to say about you. He couldn't have loved anyone more.
My fondest thoughts and prayers to you for your loss. Thanks for the detailed information on Rob Appell, a shining star.
He was not someone I "knew well" but somehow, reading his posts, I felt I did. I didn't think he was hiding much. I guess I was wrong. I believe he is at peace now... I have to believe that. The alternative is unthinkable.
HUGS to you, Scott.
He will be in our hearts forever.
He'll be more than missed by many of us~
Rest in Peace Rob.
I loved him too................as one of mine own.
my heart goes out to you & rob's family during this difficult time.
I was shocked when I first heard this last evening. I had been hoping to see him back here one of these days.
Rob will be greatly missed.
Like those above me, I offer you my sympathies. They seem meager enough but take them for what they are worth, all the comfort and blessings I can give in this time of grieving.
I hope as he looks down on this place that had been a haven for him, he sees how much he was loved and will be missed.
I know he had some troubles with his own family, but I hope they realize how much he meant to all of us on here. I have half a mind to go ahead and make those cookies with the twins and send them to Rob in care of his family.
I will miss Rob and his witty remarks and defiant 'yes I (you) can!' attitude. He had the heart of a lion....
Too many tears now. I hope he is at peace now.
Blessings on you and your husband and may you come whole through this fresh round of grief....
Everyone who knows someone in need, do whatever you can to help. We can't always save them, but it helps to let them know they matter.
There but for the grace of God, go I.
Thank you for opening your heart and sharing your thoughts
He has been missed, and will always be remembered by me, and many others on Gather.
I hope Rob is now at peace and
he is resting well........
He was a great writer, and a good friend to many here on gather.
I have been crying off and on since I learned of his departure.
I am sure that the gates of Valhalla will open wide to receive him.
Scott, he had mentioned you as his best friend.
I am burning incense to mark his passing.
As you can see, Rob was a special part of the lives of many Gather members. He was such an inspiration. To think that he gave up this way is shocking.
Rob became a connection that I had hoped to meet one day. There are tears in my eyes as I write this. May he be at peace now and may his pain be over.
I'm not crying but pretty close to it. It sounds like he's in a better place. Like Donna H., I too would have liked to have met Rob at some point. Who knows, maybe I will when it's my turn to pass.
Rob was special to me, we shared two terrible diseases, diabetes and depression.
I will miss his upbeat encouraging words.
He will be missed by so many.