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by Stefanie Plum, Gather Partner Team
Member since:
February 19, 2008

Caregiving for Aging Parents – TRANSCRIPT – Join the Discussion and Win Gather Points™!

March 17, 2009 11:21 AM EDT (Updated: March 18, 2009 09:19 AM EDT)
views: 225 | rating: 10/10 (10 votes) | comments: 129

Join us for a live chat, tonight at 8pm ET to discuss caregiving for aging parents. What do you need to know? Who can help you?

We will be joined by Dr. Madhuri Reddy of Harvard Medical School. During the chat you can ask her questions, share tips and get advice from other members! One Gather member who participates in the live discussion between 8-9pm ET will win 250 Gather PointsTM.

The chat takes place here, in the comment field below. You must refresh your browser to see new comments.

Dr. Reddy is an Instructor of Medicine at Harvard Medical School and is on staff at the Department of Gerontology at Beth Israel Medical Center. She has recently relocated to San Francisco and is Associate Medical Director of the Community Living Center at the VA Hospital at the University of California at San Francisco. Dr. Reddy completed Internal Medicine training, a Masters of Science in Clinical Epidemiology, and subspecialty training in Geriatric Medicine at the University of Toronto in 2001, followed by a fellowship in Skin & Wound Healing in the Division of Dermatology at the University of Toronto in 2001-2002. Dr. Reddy is Assistant Editor of the Journal of Geriatrics and Aging, is author of numerous publications and textbook chapters, speaks frequently at educational event,s and has recently completed a book for patients and families on caring for chronic wounds.

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Expand Tags: live chat, aging, parents, caregiving
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Comments: 129

Dagmara H. Mar 17, 2009, 11:26am EDT
Thanks
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Connie C. Mar 17, 2009, 11:50am EDT
This is a tough subject to chat about. We cared for my husbands Grandfather for over 5 years in our home. We did this without any outside help or any helf from other family members. It was difficult to say the least. He was on oxygen the last four years of his life and was unable to bath himself.

Even though it was difficult I would still do it again because he taught me so much. He taught me patience, kindness and unconditional love. The elderly have so much to offer yet they are often just pushed aside when they can no longer add to our enjoyment.

I dont intend that to be critical of other. It is only what we found in our case.
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Desiree T. Mar 17, 2009, 11:54am EDT
great! i worry about this very subject often.
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Jane S. Mar 17, 2009, 12:05pm EDT
Preserving dignity and helping keep the faith that this frailty and that frailty can pass and that elderly go through ups and down in capabilities just like everyone. To not remember one day is not a set in stone situation. Loadies do it to themselves on purpose and cannot remember why they came into a room but it passes and does not worry them. Just go with the flow and don't distress about it. To feel washed out and too tired to do anything does not mean tomorrow will not be a day of good energy. Just rest on the days you need to and get busy when you can. Even a 20 year old or a 2 year old have better days than others. I will attempt to be here for the discussion tonight. I am out to do my best at this as with al I do and guidance is good.
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Ginny W. Mar 17, 2009, 12:16pm EDT
Probably cannot make it.
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Katie Scarlett (Site Bouncer Wanna Be) O. Mar 17, 2009, 12:21pm EDT
Boy, I seldom make these 8 pm chats and this would have been another one for me. I took care of my Mom for about 15 years till she passed away here in my home under in-house hospice care January 2008. Now, my 84 yr. old mother-in-law lives with us but it's different problems as she suffers from dementia and only speaks Spanish, so we have a language problem with everyone other than my husband.
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Marianne R. Mar 17, 2009, 12:47pm EDT
Too bad it coincides with American Idol. This is a chat I could benefit from.
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Robyn F. Mar 17, 2009, 3:11pm EDT
I cant make it but i can offer this..........they're gone before we know it so no matter how tired,stressed or impatient you become, put them first.
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Renee (Pres of Baby James Foundation) ~. Mar 17, 2009, 3:22pm EDT
Hard one not sure I will make it.
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Barbara A. Mar 17, 2009, 3:33pm EDT
i was blessed to be able to help take care of gramma her last few months. every time i'd help her do anything.. she'd say.. "you really do love me dont you?! you really do love me..." i feel so loved...."
shes right. i do love her so much.. and every single thing i helped her do... was def. an act of love... and i actually was thankful i could do any/all of it for her..
she was so supprised that she was not embarrased either.. but i think that was becasue.. she could FEEL that love that we all gave her.
it was also nice that me, my sister, mom, 2 female cousins and my aunt. all were there to help her with her personal needs. we took turns staying with her.. and helping her out. we enjoyed each other during that time also. it was nice! and what a nice memory we have of grammas last few months! warm heartfelt.
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t b. Mar 17, 2009, 4:20pm EDT
Big sigh. I've been there and done this for more than one elderly parent/relative.
Depending on the personality and co-operativeness of the patient, this can be a very hard time for all involved.

The biggest thing I remember is how much the people who need you to take care of them tend to RESENT you, because they NEED you. What they really resent is aging and illness. Try to remember not to take things personally.

I have wonderful memories of taking care of my grandmother at the end of her life.
My aunt tried to take us with her when she died.
My mother n law became more crazy than ever.

This too shall pass. Literally.
Enjoy the time you still have together.
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Diane H. Mar 17, 2009, 5:23pm EDT
Wish i could make it. Not so sure can make this chat. This is a very hard topic to discuss. My mother n law lived with us since we were married, she was a tough cookie, and after her passing i had wished i could have had a little more compassion and patience with her. I do wish i would have taken the time to spend together with her a little more. We miss her dearly. My friend and i were just having this discussion the other day, she is preparing her home, making better accomodations to have her mom come live with her. My mom lives with my brother and is still working and doing her own thing however, i will definitly have her move in with us when the time comes and her needs change. For now she is where she wants to be. I worked in a nursing home for 4 days and quit, for many reasons, however it is down right disturbing how the elderly are treated. This mind you was a place where they were paying good money to be there. It was just out right upseting for me. They were ignored, dirty linens, talked unkindly to etc. I seen so much in just those 4 days. Very Sad. The other sad part is most didn't even have family come see them. The emotions were so overwhelming for me.
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tammie p. Mar 17, 2009, 6:20pm EDT
i hope i can make it. i cared for my mom in her last months. this is the perfect topic for me
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sally g. Mar 17, 2009, 8:04pm EDT
hi everyone
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Christina L. Mar 17, 2009, 8:05pm EDT
Hi, my parents are still young enough to take care of themselves, but I worry about the future when they can't do that anymore because I'm afraid we will not have the money to properly take care of them since healthcare costs keep going up and retirement homes are so expensive.
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sally g. Mar 17, 2009, 8:07pm EDT
I helped my mom take care of my grand parents every day. when my mom worked i stayed with my grand parents and did chores for them. loved my grand parents very dearly.
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sally g. Mar 17, 2009, 8:10pm EDT
but my mom is still young yet and in her 50s and she is very strong. I dont have to worry about taking care of her for a while but if i did have to she would live with me.
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golds g. Mar 17, 2009, 8:11pm EDT
hi everyone
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golds g. Mar 17, 2009, 8:11pm EDT
hows everyone doing?
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:11pm EDT
hi everyone!
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golds g. Mar 17, 2009, 8:11pm EDT
I have questions about alheizmers
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golds g. Mar 17, 2009, 8:11pm EDT
hi Madhuri Reddy
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:12pm EDT
So sorry for the delay, we had some sign in problems but we are now all set and ready to take any questions.
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sally g. Mar 17, 2009, 8:12pm EDT
hi golds. havent seen anyone talking yet.
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:12pm EDT
The stories I've been reading, above, are truly amazing and it sounds like many of you have had some real struggles with caregiving.
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sally g. Mar 17, 2009, 8:12pm EDT
hi Madhuri
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golds g. Mar 17, 2009, 8:12pm EDT
I know there was a study done a couple years ago saying that certain activities such as reading doing crosswords ... can prevent and even slow it down whats the latest on this?
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Trish A. Mar 17, 2009, 8:13pm EDT
Good evening. This is a great topic.
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golds g. Mar 17, 2009, 8:13pm EDT
hi Sally
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:13pm EDT
Golds, what is your question about Alzheimer's?
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Trish A. Mar 17, 2009, 8:14pm EDT
My parents live away from all of their children so we have to try to keep up with what is going via the phone. They both have health and cognitive issues.
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sally g. Mar 17, 2009, 8:15pm EDT
My grand father had Alzheimers for a long time. He would ask me the samething over and over but I had patience and answered him back with the same answer.
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:15pm EDT
Great question Golds.
It is indeed true that any mind activity, including reading and doing crosswords can reduce the risk of developing Alzheimer's dementia. Newer evidence shows that knitting can do the same. I think the bottom line is to keep yourself physically, mentally and socially active (evidence shows that social activities as well as close social relationships can also help slow the onset of cognitive impairment).
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:16pm EDT
Sally it sounds like you did exactly the right thing.
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golds g. Mar 17, 2009, 8:16pm EDT
so what makes one person over another get Alzheimer?
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:16pm EDT
Trish do you feel well informed about what is going on medically with your parents, though they live far away?
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golds g. Mar 17, 2009, 8:17pm EDT
Trish not everyone cares to keep in touch with their parents you're being a great daughter
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golds g. Mar 17, 2009, 8:18pm EDT
is there any way to prevent Alzheimer from occurring aside form doing those activities?
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:19pm EDT
Golds,
Nobody really knows why some people get Alzheimer's and others do not.
In some families, Alzheimer's may be inherited. This is more likely to be the case in people of younger age who get Alzheimer's (eg. under 55 yrs). It is not as likely to be primarily genetic in those who are older. There are genetic tests available (at a cost), but most physicians do not recommend getting tested because there are no cures at present.
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Christina L. Mar 17, 2009, 8:19pm EDT
My mom drinks too many diet drinks, and I have heard that these can lead to early Alzheimer's? What do you think of this idea?
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sally g. Mar 17, 2009, 8:19pm EDT
I think it was hard on my grand father because of the wars he has been through. Madhuri, my grand father had shock treatments done to his brain because of mental break downs from the war. Could that have affected him in the Alzheimer's?
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golds g. Mar 17, 2009, 8:19pm EDT
Madhuri Reddy
how do you recommend to help your parent s deal with stress?
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Susan B. Mar 17, 2009, 8:20pm EDT
I think our biggest problem when my father-in-law had a stroke was that he needed help, he didn't want us to be that help and it took us nearly a year to find someone to move in and help. We lived 8 hours away so my husband and son (He was the househusband/homeshool dad) moved in with him until we found a helper. Very stressful situation to say the least. We went everywhere we knew to find the resources we needed and they were meager at best.
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:21pm EDT
Christina,
you are right, there is some medical literature that indicates that artificial sweeteners may lead to health risks such as cognitive impairment. Again, we don't know if this is true; and if it is true, how many drinks is "too many". I would say that since there are doubts, to drink them in moderation.
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golds g. Mar 17, 2009, 8:21pm EDT
Susan there are organizations out there I would think that can help you
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:22pm EDT
Sally, when did your grandfather receive the electroshock therapy?
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golds g. Mar 17, 2009, 8:22pm EDT
are you referring to diet sodas/drinks ?
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:22pm EDT
Golds,
what type of stress do you mean? What are your parents stressed about, specifically?
Are they medically healthy?
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golds g. Mar 17, 2009, 8:23pm EDT
medically healthy but I'm talking about family stress ....
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:24pm EDT
Golds, I am referring to anything that contains artificial sweeteners such as aspartame. This would include diet sodas/drinks. Moderation is always the key.
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golds g. Mar 17, 2009, 8:24pm EDT
for example if someone used to have high blood pressure would yoga help?
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sally g. Mar 17, 2009, 8:24pm EDT
many years ago in his 30s he went through the shock treatment. He would be in his 80s now.
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:25pm EDT
Golds, if you mean stress with issues with their kids or siblings, it is important to address the source of the tension before finding the best way to relieve it. Speaking to a family doctor may be a good start.
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Christina L. Mar 17, 2009, 8:26pm EDT
Thanks for answering my question. It must be true because my mom can't remember squat, LOL! Not really funny though. Kinda scary. She's in her 50s now. I just hope she stops drinking the diet drinks (she drinks several a day) before it's too late! I have tried to warn her, but she's stubborn like a lot of "old" people.
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:26pm EDT
Golds: certainly yoga, meditation & massage can all help relaxation and high blood pressure.
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sally g. Mar 17, 2009, 8:26pm EDT
I think my grand parents had hearts of gold. a year ago they passed away 3 months apart from each other. and almost passed away the same. that was a hard thing to go through. when you are very close to someone.
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golds g. Mar 17, 2009, 8:27pm EDT
sally sorry for your loss
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:28pm EDT
hi Sally,
electroshock therapy (ECT) is a commonly used (and very effective) treatment used for people who have depression. It is especially good for people who have severe symptoms that do not respond to medications; or cannot tolerate the side effects of antidepressants. ECT works great for older adults in the treatment of depression.
But we've come a long way with ECT. While it is a very safe treatment now; decades ago, physicians used much higher doses. Certainly it is possible that some damage may have been done to your grandfather.
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sally g. Mar 17, 2009, 8:28pm EDT
Thank you. golds
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:29pm EDT
Christina - be careful generalizing all "old" people as being "stubborn". Remember they are all individuals ... and no one likes being told what to do, even when you are only telling them because you care so much!!
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Debra M. Mar 17, 2009, 8:30pm EDT
Hello everyone,
My mother-in-law has dementia which appears to have started from being depressed without receiving treatment. Since she is 89 years old, I don't know how to interact with her. She is very introverted and doesn't talk to me anymore. How do I keep her stimulated?
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golds g. Mar 17, 2009, 8:30pm EDT
hi Debra
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sally g. Mar 17, 2009, 8:30pm EDT
I was thinking that the shock treatments back then did damage his brain. But wasn't sure.
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:31pm EDT
Golds: walking can also be very therapeutic, mentally & physically.
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Debra M. Mar 17, 2009, 8:31pm EDT
Hi Golds!
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sally g. Mar 17, 2009, 8:32pm EDT
Madhuri depression runs in my family and I don't know why.
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Beverly T. Mar 17, 2009, 8:33pm EDT
This is a great topic. My Mom had a stroke after my Dad died, and is now in an assisted living facility near my sister. My sister has really young kids and sometimes the pressure of taking my Mom around to her doctors really gets to her. I wish I could help more, but we're far enough away that we can't visit very often. I'm not sure what to do to help my sister handle this stress.
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golds g. Mar 17, 2009, 8:33pm EDT
walking is a very big thing in my family
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:34pm EDT
hi Debra,
it is unlikely that dementia started from untreated depression. It is more likely that she either was developing early dementia that was incorrectly diagnosed initially as depression; or that she had depression and early dementia starting at the same time, which is very common.
Great question about how to keep her stimulated - you are a great daughter-in-law! Keep talking to her. Keep sentences simple and clear.
Taking her to a geriatric day program is a wonderful idea, even though she may not directly interact with others.
I would also recommend taking her to see a geriatrician to see if there are any treatable medical issues going on that might help her be a little more extroverted.
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golds g. Mar 17, 2009, 8:34pm EDT
Beverly talking to your sister may help just to hear how its going and when she needs to vent ...
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Desiree T. Mar 17, 2009, 8:35pm EDT
Hello I am here. Just wanting to learn.
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golds g. Mar 17, 2009, 8:36pm EDT
is alheizmers genetic?
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:36pm EDT
Sally - this is very typical of the Nurture vs. Nature debate: Is depression in your family because of genetics (ie. it is inherited) or because of family dynamics? It may be a bit of both. I hope you and/or your family have saught counselling.
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golds g. Mar 17, 2009, 8:36pm EDT
I meant Alzheimer's * lol
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sally g. Mar 17, 2009, 8:37pm EDT
Madhuri, is there any advise you can give me to try and stop the depression that goes through peoples family's?
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Christina L. Mar 17, 2009, 8:38pm EDT
I'm very stubborn myself, so I don't think it's just "old" people who are stubborn. I put it in quotes because many people make that generalization. We just tend to pick on older people for being stubborn because they're "old" but young people can be just as stubborn, and no one young or old, like you said, likes to be told what to do. My mom still tries to tell me what to do even though I'm an adult now. She still thinks she has to "mother" me and make my decisions for me no matter how old I am I guess, LOL.
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:38pm EDT
Beverly,
this situation is very common. I think you can be very helpful to your sister, even though you live far away. Here are some suggestions:
1. most importantly, ask your sister how exactly you can be the most help to her
2. offer to pay for respite care (so your mother can stay in a facility for a few days while your sister gets a break) or for some home help
3. organize your trips home so you are present for the things that your sister likes to do the least (such as doctors' appts etc)
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Beverly T. Mar 17, 2009, 8:39pm EDT
I agree golds, thanks!
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:39pm EDT
Christina - I know how you feel, my mother does the same thing!
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:39pm EDT
Golds, I answered this question briefly earlier in this string ... but please let me know if you'd like more details.
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golds g. Mar 17, 2009, 8:40pm EDT
your welcome Beverly
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Denise B. Mar 17, 2009, 8:40pm EDT
My mother had to have hospice care at the end - her cancer needed constant medication for the pain and she could no longer recognize any of us or care in anyway for herself - We all made sure she was never alone. we took shifts to make sure that if she passed she was not alone and that she got proper care. We were the only ones who had the time it took to feed her ( the nurses didn't have that kind of time) and change her when she needed that as well
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:41pm EDT
Sally, this is really an important question and one that requires a detailed assessment. I think, even if you don't suffer from depression yourself, it is worth going to see a psychiatrist to get some real answers for yourself and your family.
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sally g. Mar 17, 2009, 8:41pm EDT
I think its inherited in my family. And yes I go to counselling. My youngest daughter goes to. My oldest daughter use to go but not anymore. she is out on her own. and lives a distance from me. My youngest daughter goes through a lot of depression and bad thoughts in her head.
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golds g. Mar 17, 2009, 8:41pm EDT
what I mean is is if a family member has Alzheimer does that mean the next generation is more likely to get it
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:41pm EDT
Denise, you did everything exactly right.
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:42pm EDT
Sally, when you say counselling, do you see a psychiatrist? There are many types of counsellors so I'm just clarifying.
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Denise B. Mar 17, 2009, 8:43pm EDT
it is very hard to watch your loved ones slide away - both physically and mentally
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:44pm EDT
Alzheimer's is most likely to run in families when the afflicted individuals are young at onset, ie. under 55 yrs old.
Additionally, if you have had 2 first degree relatives who had Alzheimer's, you may be at higher risk.
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Beverly T. Mar 17, 2009, 8:44pm EDT
Thanks, Dr. Reddy. Those things are all hard to do because my hubby has been laid off a lot lately, so we're hurting financially. I did go down to visit a couple of times last year to take over for a few days. But I had no place to stay, since my Mom is in a facility. The situation is complicated because the facility charges for every little thing, and my sister has taken on a lot of extras to help cut cost. So she is doing Mom's laundry, and buying her every day supplies. My brother pays her to help out of the funds of the estate, but it's always very tight. Unfortunately, my sister has 3 little girls and she feels taking care of Mom is like taking on another child (Mom has OCD). I try to help, but am physically limited myself. It's a tough situation.
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:45pm EDT
Denise - I empathize with you. But I know it was only your mother's physical body that slid away, and that the most important part of her more with you than ever.
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golds g. Mar 17, 2009, 8:45pm EDT
what deos 2 first degree relatives mean?
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Christina L. Mar 17, 2009, 8:46pm EDT
Denise, I admire and respect anyone with the strength to do what you did for your mom. I hope if I am ever in that situation in the future that I can do the same for my parents.
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sally g. Mar 17, 2009, 8:46pm EDT
yes psychiatrist. I no when I was a kid I would go through alot of fear and my mom sent me to counselling. and it helped me a great deal back then.
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:47pm EDT
Hi Beverly. That is certainly a tough situation.
But talking to your sister and showing her you care is still the most important step. She may try and push you away, because she's stressed and may at times be resentful of you not being there. But keep at it - keep communicating with her (even allowing her a chance to vent may be a great help) and perhaps offer to take care of the kids if she can send them your way from time to time.
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:48pm EDT
Golds, first degree means mother, father, brother, sister
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Madhuri Reddy, Harvard Medical School Mar 17, 2009, 8:49pm EDT
Sally, that is good. Remember, you can always get a second opinion (and should) if you are not satisfied with the answers.
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Denise B. Mar 17, 2009, 8:50pm EDT
I was only in my early 20's when my mom died but we had been through this with my dad's mom when I was 10 - she came to live with us for a year before she passed so I had seen it all before - it did not make it any easier. But at least I knew what to expect - those are memories you don't easily forget.
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