A Goal for 2009

A Goal for 2009

by Marilyn Mackenzie

I don't believe in New Year's resolutions, and I've said so before.  Check out this article, that appeared in two Texas newspapers as a guest column a few years ago:

 Resolutions, No! Commitments, Yes!  -  Jump right in and make a commitment - a New Year has arrived!  -  by Marilyn Mackenzie

No, I don't believe in New Year's resolutions.  But I do believe in making goals and commitments.  The problem is that with my fibromyalgia, I might have every intention of doing something, then I'll forget, or I'll have too much pain or too much fatigue to follow through.  And sometimes a window of opportunity passes me by.

But after posting this today 

What in the world is fibro fog?  by Marilyn Mackenzie,

I think I will make a commitment to achieve something big before the end of the year.

What, you might ask?  Well, go ahead and ask.  (Tapping foot...waiting for you to ask...)

Well, thanks for asking. 

Okay.  What I have decided is that I want to put together a book (or booklet, depending on how much I include) called, Fibromyalgia:  A Glimpse Inside.

I really believe that our families, our friends, even our doctors and attornies (who are working on disability cases with us) do not understand fibromyalgia, even if they try.

Sure there are books out there.  There are some great books. 

I have one called

that I love!

But it's not about me.  I think if I could put everything I've already written about my fibro experiences in one place and put it into book form for my friends and family, it might explain the situation better.

So that's one of my goals for 2009.  That and making sure that everything the government needs to make a good decision about my disability is presented to the Social Security Administration and to the judge.

You know what I wish?  I wish that when a person goes before an administrative judge about his/her disability that you could talk freely, instead of having to only answer questions as presented by the judge or your attorney.  I wish I had had a notebook with pages explaining each malady that tags along with or is a part of fibromyalgia.  I wish I had a few pictures to show the difference in me before I was hit with this and after.  And pictures of my hands like I post here now and then.

Perhaps another goal should be to get actively involved in helping change the system.  Now that's a lofty goal.