My days routinely started by criss-crossing through the Metroplex to visit the terminally ill patients under my care. There were no cell phones then. There were beepers. Invariably right in the middle of a construction area, and no where near a pay phone the office would signal to provide an unwelcome update. In some of the areas that I entered, three out of four pay phones had been vandalized and were missing receivers, so even treating the beep as urgent meant a delay. Eventually I'd receive the news. Please visit Mr. X in the afternoon this time, or Mrs Y needs you now. In that case I'd reverse directions hoping to reach Mrs Y in time, and before my beeper changed the days priority yet again.
One particularly hot Texas day there had been several urgent interruptions. I'd left the house without breakfast, thinking I'd grab something quickly. That had never happened and now lunch had to be missed. Mr Z was bleeding.
I'd never met Mr. Z. He was, I quickly flipped through my book, Martha's admission, and Martha was no doubt enjoying her much needed day off at a water park right now. I did recall what she had shared in staff meeting. He wanted to live his last days at home, but Mrs. Z was so afraid that she was threatening to hospitalise at "every little bump in the road".
As I turned the car around yet again and rushed to follow Mapsco to the crisis,
I wondered absently, What is 'a little bump' when your loved one is slowly dying? Uncontrolled coughing with tiny sips of water? Refusing a special meal? A leaking urinary catheter? Delirium? I was pretty sure that bleeding wouldn't be a small thing if I were Mrs. Z.
It was a 'rough' neighborhood. Meaning, the upper right corner of every page of Mr. Z's chart held this notation: Extra caution for night visits..2 nurses if possible. That's something no nurse wants to see. Not at midnight, as you're preparing to leave on a emergency call, and not now, when the last thing you will need to be doing is counting medications to assure none have been stolen or sold on the black market for groceries.
At least they have a driveway I thought turning past a collection of neighborhood youths. Almost they looked alike with sleeves rolled up, arms crossed, and their angry, suspicious expressions. As I locked my car Mrs. Z threw open the door and motioned me inside. "He begged me not to call the ambulance until you got here."
Now there is bleeding you can manage easily, and bleeding that you can not. This looked grim. Mr Z's heart rate told me two things. We had a little time to try to manage the hemorrhage. Not long. A little. He was stressed. When he lifted the cloth away from his face to try to speak a thin stream of blood sprayed me. He gagged, spit into the rag and pressed it to his face again. The bleeding was deep from within his nasal airway. Evidently the cancer had invaded a small artery. Mrs Z sobbed and begged me to call an ambulance. I sat on the edge of his bed and took his hand. "Here's the truth, Mr Z, this is a dangerous bleed that might be stopped at the hospital by cautery. Do you understand?" He nodded. "Would you like me to arrange that?" Vehemently he shook his head and with his finger pointed he wanted to stay right here. Right at home.
"This is hard, but I have to ask, do you understand that if you don't go to the hospital we may not be able to stop the bleeding and that this could be the way, and the time?" He nodded, squeezed my hand and met my gaze. When he reached for his wife, she slumped into a chair grief stricken.
"Sit here." I encouraged her. "There are things we can try."
I found my way into their kitchen, made a couple of ice packs from frozen peas placed in zip locks, and returned placing one across the bridge of his nose, and one across his throat. I took his pulse again. Still time. Vasoconstriction. Thats what I need. There was no nasal spray. Not in either medicine cabinet. I stepped onto the porch. Immediately the gang that had moved from sidewalk to yard was alert.
"I need someone's nasal spray. Strong nasal spray. Right now." Without hesitation three of the five young men procured some. "Take mine. It's.. better" one of them said. I thanked him and hurried back inside.
"The kids in your yard?" I said to Mrs Z, holding up the nasal spray I was given.
"My nephew and his friends." She answered, nodding. I tilted Mr. Z's head back, told him not to swallow until he had to, and proceeded to fill both nares with the spray. Then I prayed.
Later, there was time for teaching that bleeding is not painful. Time to prepare them for the next and probably last bleed. There was time for helping to clean away the blood, time for oral care, even time to crush ice as a comfort measure.
By the time I got to my car it was late enough that those loitering young men/deliquent/heroes would have been home from school, if they had attended school. I was dizzy with hunger. As I was backing out of the drive, Mrs Z dashed out, and handed me my breakfast and lunch on a paper towel. A slice of buttermilk pie I have never forgotten.
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by
Debbie G.
Member since:
July 16, 2006 Buttermilk pie on a paper towel
October 17, 2008 04:56 PM EDT
(Updated: October 17, 2008 05:03 PM EDT)
views: 187
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rating: 10/10
(25 votes)
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comments: 66
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Comments: 66
Tonia, what an inspiration you are.
Jean, thanks that means so much!
Sue, it matters that you share this. I know when I write about nursing experiences reading it can be difficult. Finding a balance between the reality and the need for sensitivity isn't always easy. If I have managed that I am glad.
Thank you for this story and your service.
An angel resides offering
comfort and love to those
in dire distress.
Deb, having met a few nurses in my lifetime, I am in awe of the work they do each day. This was a wonderful read I found this evening that makes me just smile that there are people like you I can call my friend.
I have a progound admiration for home health workers of all kinds -and a deep sense of affection and gratitude to hospice workers.
Sharon, it is a privilege. A very special privilege. Thank you for your kind words.
Madame D. If I had the words you would already have the stories. No matter how hard I try, I can't do them justice, and so I share as I can. Thanks for the encouragement.
Dannielle, so sweet of you, but it isn't, and I'm not.
Bob, thank you so much.
Peter, it sounds like you have had personal experience. *hugs for you*
Regards,
Doyle I <~~~~~
And I wish there were SO many more just like you out there to do what needs doing.
I'm a nurse too but have always worked in a hospital setting where (theoretically) we have all the supplies we will need.
So great to see you writing. Glad I happened to see this.
Debbie, you asked the million dollar question right there. I hope that Mr. Z was able to die in his own home the way he wanted it to be. It's traumatic for the family either way, whether he dies at home or in a nursing home or in a hospital.
It hasn't been too long since we had Hospice nurses here in our home helping us with my Mother-in-Law and I can not sing their praises loud enough. Without their help and support, I don't think we could have managed her care. They are angels who deserve all the love and appreciation we can give them... plus all the extra buttermilk pies on paper towels, of course.
Blessings.
Debbie, my siblings and I took turns keeping vigil as my father lay dying.
We hired a private duty nurse to assist during the day (Dad was in a retiremnt home with basic nursing services).
In the evening and at night, a hospice nurse visited and sat with us.
We worked with two of them, and they were among the kindest, considerate, and most professional caregivers that I have known.
You are my hero. Once upon a time I wanted to be a nurse and spent 11 months training in a big New York City hospital . I thought for a while I would like to be a visiting nurse right there in the city, but homesick country girl , and a hopeless scatterbrain that I proved to be, I quit.
I have been missing you!
Another thing - would you post your recipe for your delicious banana nut bread - pleeeeze!
Grems, Hospice often shows the raw sides too, because grief is excruciating. It does speak to the highest in all of us, when one can momentarily reach out to others in the midst of such pain.
Kate, so sweet of you. Mr Z wore his dignity with his whole self. I was privileged to make it a bit easier for him and his family.
Jessie, thank you so much. I treasure all that is shared here by all of you. I love words, but so often feel I can't express myself well enough. Your encouragement means so much.
Flit, thank you. I also wish for other nurses that their lives are being as enriched as mine has been. The heroes in the hospice experience are the families.
Wilma, I worked in Hospice for over five years, and used what I gained there every day in ICU. All service, is service. I think it is a privilege that enriches our lives. I think we receive as much as we give. I'm glad you liked the title. I have to ask, ( I was hoping a nurse would read it) did you wonder what might have been in the nasal spray? Later I couldn't help wondering. Because it worked on such a bleed.
I'll be back to comment on the rest. Need my caffeine.
M.K. he lived his final moments without pain at home as he wished.
Duckie, allowing your mother-in-law to remain at home was a true, and heroic gift. I know first hand the sacrifices. Peace and all good be yours my friend.
Lynn, thank you. I am glad your personal memories during that stressful terrible time include some gentleness.
Magi!! Such praise from you leaves me speechless.
Aniko, thank you so much!
Peter, thank you for sharing this. I think too few people realize that Hospice is invaluable even when other nursing services are on board. Their expertise is irreplaceable. They oversee and make recommendations involving the care delivered that can make all the difference in symptom management.
Ina, there can be no higher praise. You bring me tears of gratitude. Thank you.
Ruth, I'm so glad you found this, and that it was meaningful. Thank you.
I will ask Tonia to send the recipe.
Katrina, my heart goes out to you. I can't know exactly what you are going through, but my own experiences give me a clue. I will be in touch.
Thank you Donna!
Kris, it's so good to see you here. Thank you so much.
Marilyn, I appreciate that. Thank you.
Thanks everyone for your thoughtful comments. It means a lot to me.
You are a wonderful writer who is able to put your caring spirit on the page and share with us your experiences. Please consider gathering these wonderful essays into a book and publishing it. It could build your retirement. If you don't want to mess with the publishing industry, check into www.lulu.com
I enjoyed this so much and thought again how sad I am that my mother didn't have a nurse like you on her last day.
We had been on hospice for just 9 days and it was Saturday before Easter Sunday and there was only one nurse on duty. So while he washed dishes for someone else across town, my mother died of an internal bleed caused by an aide's error. She had no pain medication, which I began requesting at 10am and she died at 11 pm. It was a terrible experience and I was alone. I can't help thinking of it every time I hear the word Hospice. But I do honor the large number of excellent organizations and people all over the country which ease the way for those of us passing over.
Thank you also Ruth, for the introduction.
Mariana, Thank you. It's good to see you!
I miss you, Debbie. I miss your writing, hearing about your health, your animals, Tonia, your horses, your son, your granddaughter... everything. If you can, keep it up. You bring such beauty to this world. I just plain miss you.
Sue, thank you so much!
Lady Raven, there is no where nearer the heart of life. It changes you to be there.
Carolion, thank you. I'll try.
Mona, that means so much.
Aaron, my dear friend. Your words inspire me. I've missed you also.
I thank you for writing of your experiences and posting them for us all to read.
They are so heart wrenching but full of humanity.
Primarily I am elated that you are writing again. That is like uncorking a bottle of champagne on our Gather party. Now we can celebrate!
Your writing on this subject is direct and gritty and emotional. It presents an immediate reality for the reader of the world of the hospice health care giver, not in a sterile hospital but in a trailer park or a ghetto. You discuss the fine points of a medical procedure much like Rachel Ray lists the ingredients of her latest 30 Minute Meal recipe.
But this is no AMA Journal entry. This is a 3-dimensional adventure about real people with real feelings. You give them dignity and respect. And in return you got a slice of buttermilk pie. All in all, not a bad exchange.
What an amazing story, from an amazing woman. Buttermilk pie & I be willing to bet ...you are in thoughts and prayers quite often. You did *good girl* I missed you while I was away.
big hug & love, mo-zy
You are a wonderful writer, Deb. You take the reader in with you to experience what you experienced.....