The Fibro Fog
Today is one of those days, I feel listless, I feel tired, and my brain has fizzled out. It started when a friend of mine emailed me and asked me to send her my phone number. She had something she wanted to discuss with me. I sent the phone number. She wrote back that it was not the right one. I needed to check the number I had given her.
I checked the number and as far as I was concerned it was the right one. I told her to try again. Apparently she called three times and got a strange man each time. I couldn’t believe it. I know my phone number. The number I had given her was correct.
I decided to call the number and sure enough a man answered. I asked him if I had dialed what I truly believed was my number and he said yes. I told him it was my number and I couldn’t understand why he would have it. I was adamant that I had the number for three years. Still being nice, the man informed me he had that number for 8 years.
I was really confused at this point. I said that I would call Bell and get the problem sorted out. I still do not know how this man and I can have the same phone number.
Instead, what I did was to call my aunt and ask her what my phone number was. She told me and I was the one who was wrong. I was one number off. How could I make that mistake? How could I be so certain that the number this man held for 8 years was mine? What happened to logic? I have always been a logical person. The thought should have occurred to me that I was mistaken and no two complete strangers could possibly have the same phone number.
I quickly called back the nice gentleman and explained that I was wrong and I apologized for inconveniencing him. However, I could not let this situation go. How could I not know my own phone number and more importantly not figure out the logic that two people do not have the same phone number. Where was my brain? What could I have possibly been thinking, or more to the point, why was I not thinking?
I am a logical person, I am an intelligent person, I am a person that has a bachelor’s in psychology, a diploma in Family Life Education and Master’s in Counseling Psychology and yet I was stumped. This article is purposely redundant at this point to stress the fact that I was ruminating over this issue and still could not figure it out.
Finally, I decided to take it to an open forum that I am a member of. I explained the story and within minutes I got the answer I was looking for. Only now I feel foolish since I couldn’t figure it out myself.
You see, my misquoting my phone number was a result of what the respondent called the “fibro fog”. Sufferers of Fibromyalgia such as myself, suffer from various symptoms. Losing our memory, forgetting things, being confused about things and so on, are all symptoms of the fibro fog. Today I really was in a fog. It is the first time that I have experienced a fog of this type, but not the first time that I have forgotten things that I really should have remembered. I can’t stress how scary this is to me.
I have various symptoms of Fibromyalgia. The most common symptoms are pain all over my body. Sometimes the pain is in the neck, or it could be an arm, a leg, a shoulder, or in my lower back. Fibromyalgia pain cannot be detected on an X-ray.
For the longest time Fibromyalgia was considered a phantom disease. Doctors believed women had psychological issues and the pain more or less was a product of their mind. Today more and more doctors are starting to see Fibromyalgia as a real disease and are starting to treat it. However, the Quebec government is yet to recognize this disease as a valid reason for disability.
I was on temporary disability only now, the Quebec government is refusing to extend the disability coverage reasoning that I after a year I should be recovered. Temporary disability is just that, temporary. As far as they are considered it is not a permanent condition. I am stuck between a rock and a hard spot.
My brain is foggy. I have pain all the time. I wake up in the middle of the night in pain. I toss and turn all night long and I never have a good night sleep. I cannot stand up for more than five minutes without my back hurting. When my back hurts I walk stooped over like the hunch back of Notre Dame. It hurts too much to stand up straight. My mobility is severely limited. I cannot walk outdoors and I am housebound for 8 months of the year. I cannot do housework, except for on a good day. However the good days are few and far between.
My emotions are out of balance, and my brain is now foggy at times. I am afraid that I am losing myself. I want so much to be the person I used to be. However, since 2001, I have been diagnosed with Fibromyalgia, diabetes, thyroid problems, and more. How anyone could think that Fibromyalgia is a phantom condition I do not know. I was never one to run to doctors unnecessarily and the last that I am is a hypocondriac.
Yet when I am at my lowest, emotionally and physically, I must battle the Quebec government for recognition of my disability. My brain is so foggy I don’t even know my own phone number but I must fight for my rights.
Note: For my information on Fibromyalgia visit this website:
http://bodyandhealth.canada.com/channel_condition_info_details.asp?disease_id=59&channel_id=1055&relation_id=17519


Comments: 58
Lately I have noticed that we are showing more ads on TV for treatment of Fibro ... before that I rarely if ever heard about the disease. Good luck in your fight! God will give you strength and we here will lift you in prayer.
I have Fibromyalgia as well. It has caused me to become totally disabled. I can barely walk a half a block without my legs giving out. I am only 35 years old. I have been trying to get social security for about 5 years now. The government in the United States is pretty stingy about giving out disability to Fibro patients. It is still considered to be an illness that cannot be cured, but the government does very little if at all to research it. Luckily the FDA passed a new drug through called Lyrica. It has helped me a lot - other than it caused weight gain. I have had the foggy brain you are talking about...but not to the same extent that you experienced. My heart goes out to you and everyone that suffers from Fibromyalgia. It is real and you aren't crazy.
Two of my friends are suffering of Fibromyalgia, and it must be very painful from what I am told. May the Divine healing help you and may you continue to be with us.
I think it isn't so much that they don't believe ti is a true disorder, illness, 'autoimmune disease', but they just don't want to expend funds. I have had so many express disbelief that I had not rec'd help from the ss admin, and they are ones who work in other governmnet agencies.
The fog is common and with lupus there is also mental problems.....sometimes I don't know who I am, where I am,..and I have gotten 'lost' only blocks from home and not known what I was going to do. Thankfully, it clears enough to function even if my kids say 'Huh? I don't know what you're talking about" or "I can't understand you," because I am not even making words.
Hang in there....it takes a lot of patience to put up with it and it isn't going away for any of us.
From what I've heard, you need a lawyer in the states to get disability payments.
I stupidly decided (actually hubby pushed me into it) to take a course in medical transcription, so I could work at home at my own pace. It takes me much longer than the average bear to learn .....and remember.....but I just keep fighting and fighting....my hands hurt and go numb.....I'm stuck in the middle -- I'm not bad enough to get disability, but I'm not good enough to work..........
I am so sorry for you hon, you are caught between a rock and a hard spot, and Shirley is even worse, geez why does everything have to be so hard for us.
I can't work outside the home, I work on my computer and make a bit of money freelance writing but it is not nearly enough to pay the bills.
I wish there was something I could do or say that would make things easier for you. I'm sending blessings your way.
do you have certain points that are very sensitive to touch? That is one way the fibro doctors test, but do read the info in the link I sent you to know all the combinations of symptoms related to fibro that you may have
http://friendsofdanh.gather.com.
Our goal is to help you further your exposure and to support other gather members.
It has happened
I have much of the same as you.
With me though the pain is from a genetic connective tissue disorder likely a type of Marfan Syndrome or a form of Ehler's Danlos Syndrome.
This disease killed my brother and killed or debilitated most of my Dad's family - out of 8 kids, he is the only one left. He is only 67.
My brain fog comes from a mini stroke that I had several years ago mainly and perhaps partly from the other too. When I am calm and well rested no one notices but me, but when I am tired or upset - I start to stutter a little and get very forgetful and can't spell or think of well known things - very much like tip-of-the-tongue-syndrome.
Like you, I am/was an educated person - I got mostly "A"s in college and tutored everyone else. All while being a single mom with 2 little kids.
Sometimes, I am the old me and I think I can take on anything - and I will start to - and then, the body fails me and sometimes the mind a little too. This leaves me wanting to retreat and I think less of myself. These are feelings that I must fight against because my kids and my Mom need me to be strong and help them to fight their battles.
My Mom's cancer is back and is everywhere and my kids have the same disorder as me so I HAVE to fight on no matter what.
Carol - I am so sorry to have gone on and on on your thread. I am sorry - I just kept tyoing, I couldn't stop until this all came out.
Well, if nothing else, I hope it helps you to know there are others out here who "get it".
Take care and remember that you are not alone - you have us and we will support each other though these things.
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I hope you find a way to take care of yourself soon.
Blessings to you!
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As you know, I saw this in another forum. I think it was there that someone suggested that it was fibro fog. I was thinking about you today as my 86 year old father-in-law ( think he's 86...maybe 88) called to ask for hubby's phone number at work. His forgetfulness is due to age and Alzheimer's. But I couldn't remember either. I told him I'd have to let my fingers "pretend" they were dialing and maybe that would help me remember.
For me, fibro fog takes on as many different faces as my pains. Sometimes it is as if I'm walking in a foggy world. Sometimes I do strange things...like not turning on the oven for dinner.
As you know, I've been trying to get disability in the US for 5 years.
Great job!
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I hope you cal learn to deal with it or that the medical world can help you out. I know its rough to have such problems no matter how they come about.