by
Lela M.
Member since:
August 10, 2007
I Feel Like I’m Losing My Mind
August 26, 2008 03:51 PM EDT
views: 464
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comments: 24
I just don’t know where I fit in anymore. I’m neither here nor there. I’m in limbo. Sometimes I think I’m in ****. I’ve been diagnosed with Primary Pulmonary Hypertension. They don’t know how you get it, but I do not smoke, and it’s fairly rare. I have to be on oxygen 24/7 and I absolutely hate that fact. I am connected to a machine that is sending oxygen through a 30 ft. hose that goes through my house so that I can walk around it. It’s aggravating and irritating because I have to carry the excess line and it gets caught in everything even after we put hooks up high. The line is always in the way. Anytime that I have to leave my house I have to take a portable unit with me. I’m having a hard time accepting my fate. I try not to think about it but my only hope for any kind of life is to submit to a heart and lung transplant. That is a very scary thought. I have to wait until my condition gets worse then and only then will I be able to see if I can qualify for it. Right now I am not able to qualify at all because I am too far overweight. What the doctors diagnose as Morbidly Obese. I had a lap band put in and I’m am definitely eating less but I am not good with the exercise because I’m on all kinds of medicine to slow my heart down. It’s a classic catch 22. I’m overweight due to my illness and it keeps me from being able to lose the weight. I have a pacemaker/defibrillator because my heart beats too fast and too slow. I lost my job because of my health, I lost my health insurance and I’m not sure that I can ever be a good candidate for any kind of job. On top of everything, if I don’t lose the weight then I will not be a good candidate for the heart and lung transplant. I have been in a fight for my life two other times when I had cancer. I had melanoma and sarcoma. I was able to beat both of those cancers. I can’t beat this. I’ve lost my will to fight and I don’t see how to overcome this insurmountable obstacle, my weight. Dieting and exercise is not doing it for me. I don’t know what else to do. I went through the hardest three years just trying to find out why I was having such a hard time breathing. I almost died when they figured out that I had Congestive Heart Failure and the Cardiologist did not want to admit me to the hospital. My Pulmonary Specialist had to force him to admit me. Believe me, I changed doctors after that. I’m not in the mood for sympathy or empathy. I just want to rant and rave because I am angry and I’m tired of fighting. I am so used to being able to take care of myself and others and now I have to leave that in my family’s hands. Sometimes I feel like I’m just a super burden on them and want to leave so they can have the lives they were supposed to. Not have to take care of me. They would be better off. What kind of a burden will I be when my condition gets worse? I can’t take it sometimes and that’s why I feel like I’m going crazy. Maybe I am in ****. Please don't pay any attention to me. I am just being really negative today. I am just venting my anger. I have my bad days and good days, just like everybody else. I'm just angry and gripey.
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Comments: 24
Love and Prayers and Many many hugs !!
I know that you are scared and depressed, but you must never lose HOPE. I will be praying for you. God bless you.
Sorry to hear this...Sorry to hear you are having a hard time of it...but you know I have learned that some times we have to let others be the ones doing the taking care of...instead of us...which it is sometimes harder to be the one being taking care of...especially when you are used to taking care of others.
I keep my parents out of nursing homes....Mom died in 2003, Dad died in 2005 and I wound up in a nursing home for 7 weeks for 2006...so I know how it is to have the role reversal... it ain't easy...but hang in there...there is nothing you can do but say Thank you...and feel the love... and all that Debby said...
Hugs...Heather
you said you lost your health insurance- I'm afraid i don't understand your system. Don't you pay a yearly premium so that you are covered at least for the public sector of your hospitals. I know private health cover is expensive and I certainly don't have that but our tax man takes out medicare levies before he thinks of giving you a tax refund.
I wish you well and hope things improve for you
I lost my health insurance when I lost my job because I couldn't afford Cobra. Cobra is very expensive and without a job, I couldn't pay for it. My husband had to switch over to his company's lousy insurance for him, and he doesn't make enough for me because now I can't pass a physical and I can't afford private insurance. It's ridiculous. I hate our health system. I don't qualify for Medicare or anything at this point. Hence the limbo. I'm so frustrated.
You are truly LOVED!
Your Friend,
Rene
I like what Sarah said above...anger is natural but action is better. She's right. Do *something* different and you will feel better because you are taking action.
Blessings and hugs.....