Although he was still dependent on the ventilator, the hospital was planning to discharge my husband this week. My children and I were planning to bring him home and were receiving the training necessary to provide total care
Evan was alert when the doctor came into his hospital room on Tuesday morning. He looked up and smiled in response to the doctor's greeting. The doctor commented on how well he looked and teased "If you do any better, I'm going to send you home".
About 5 minutes after the doctor left, Evan began having trouble breathing. The rapid response team converged on the room when I screamed for help. Another doctor and a respiratory therapist waited with me in the hallway until the doctor came out with the news that no one wants to hear.
Someone called my kids and we all sat with the body for the next few hours. Evan looked so peaceful. It almost looked like he was smiling.