''So, you've got Cancer. GET A GRIP !"
"Oh, you've got Multiple Sclerosis----JUST SNAP OUT OF IT ! "
"Muscular Dystrophy you say --- IT"S ALL IN YOUR HEAD !"
''Epilepsy with severe seizures--- JUST GET YOUR MIND OFF OF IT. THINK HAPPY THOUGHTS---IT'LL ALL GET BETTER---MARK MY WORDS."
"Diabetes ? YOU NEED TO JUST QUIT BEING SO NEGATIVE! ATTITUDE IS EVERYTHING. CHEER UP! "
Yes, I know--- those are harsh, cruel, rude, ignorant, misinformed, and painful statements no person with any of the above medical issues should ever have to hear, or tolerate. And people with those medical conditions probably never WOULD have to hear those words---
Yet everyday those very words are spoken to and painfully heard by multitudes of people, like myself, who suffer from depression. Or Bi-Polarity. Manic-Depression. Obsessive Compulsive Disorder. Paranoid/Schizophrenia---or a myriad of other ''invisible' diseases.
Everyone can see the evident pain and toll on a cripped body. Yet, few understand, nor try to, the agony suffered by those of us with " a crippled mind ."
A few years ago a beautiful country song used a term that could only have been written by someone astute enough to understand the inner world of the clinically depressed ( and others). The song referred to : " the insane locked up---within themselves."
Those words always meant so much to me---becuase I've been in that prison of emotions, and thoughts, and fears,---of nightmares, of turmoil, of pain--- a world of uncontrollable crying ( no matter how big a man you are, nor how tough a woman ) --- a world where you become a shell of the person you used to be; a prison where you only want to sleep because being awake means facing a world you can't face anymore : and sometimes you sleep for days,yet sometimes you can't sleep at all----
A world where the things you once loved to do suddenly become- memories from another life you don't have the strength to live anymore, even though you miss that life desperately. A world where what you did everyday of your life is suddenly an unbearable burden, an impossible task you can't perform. You cry, you sleep, or try to, you hide in your room/tomb/womb unable to even face those you love with all your heart and soul---you just can't "DO" anymore, you can"t function---YOU'RE JUST NOT YOU ANYMORE. AND YOU MISS ''YOURSELF', AND YOUR LOVED ONES MISS ''YOU''--- BUT you ARE NOWHERE TO BE FOUND IN THIS SHELL---IN THIS DARKNESS, IN THIS PRISON!!!
And then someone comes along, with perhaps even the sweetest and kindest of intentions, and what do they say ?: You've just got to snap out of this. ( Oh I wish it was that easy!) They tell you, it's all in your head. ( Well yes--it is actually--and I've tried very hard to get it out of there, but I can't!!!! I CAN"T!!!"
They tell you to get a grip--or get a handle on it.( It doesn't have either a handle or a grip. IT HANDLES YOU!!!) They softly say , perhaps stroking your hair or your forehead or cheek---You know, maybe if you'd just get your mind off of it ( WELL,ACTUALLY if I could get IT off MY MIND I'd love to)----- maybe if you'd just think happy thoughts (MY friend do you know how much of a struggle it is sometimes just to THINK at all ) maybe if you'd try to be more positive ( OH PLEASE, I hardly have the strength or desire to " BE "at all ) ---you know attitude is everything ( OH YEAH, is cancer an attitude--is diabetes an attitude--- is MS or MD a matter of attitude )--- so just cheer up, put a smile on that handsome/ beautiful face of yours and you'll be back on your feet in no time ( Really, bless your loving, misinformed heart---but it just doesn't work that way. Please turn out the light and shut the door on your way out ---and I'm sorry: that meal looks great,and I appreciate it, but please take it with you -- I really have absolutely no appetite these days.."
They tell you all these things they would never tell A Cancer patient, or a diabetic, or epileptic--becuase---well, " THEY can't control what's wrong with THEM! THEY can't HELP what's wrong with THEM !!!." ( I hope everyone reading this knows I don't mean any disrespect to anyone such afflicted ---I'm mirroring and echoing society's misunderstandings and prejudgements. My heart goes out to anyone of any affliction or disease --- I suffer from one. It just doesn't show up on x-rays, cat-scans, or bloodwork. )
Oh..and then, bless their hearts ( and sometimes not )---here come your well-meaning Church Friends . Bite your tongue as hard as you can. '' PEOPLE WHO HAVE JESUS DON'T HAVE A REASON TO BE DEPRESSED!!!! " ( Thank you so much---but people who suffer from depression don't need a "REASON" to be depressed---- it works real well on its own, without rhyme or REASON."
They continue: " So this makes me wonder---are you really saved? Are you ."
Here is where I've got to say, that no matter what befalls a chruchmember in life--a disease, financial hardships, a divorce, DEPRESSION, ---no matter what a churchmember goes through in their lives: there is well-rehearsed outline of an answer that every other churchmember will repeat one variation or another of....no matter what someone is going through, they're going to hear some version of the following :
'' IF YOU'LL JUST TITHE MORE, GIVE MORE TO THE CHURCH IN TIME AND ATTENDANCE, DO MORE FOR THE CHURCH ( although they may use the word GOD )---GET YOURSELF RIGHT WITH GOD, GET ALL THE UNCONFESSED SIN OUT OF YOUR LIFE, QUIT ' GIVING ' THE DEVIL SO MUCH CONTROL OF YOUR LIFE, GET IN YOUR BIBLE, AND ASK GOD for FORGIVENESS----EVERYTHING'S GONNA BE ALRIGHT."
O.K. ( and God knows my meaning and intention here): GOD, I'M SORRY I'VE GOT CANCER. DIABETES. MS. DEPRESSION./GOD I'M SORRY MY HOUSE BURNED DOWN AND I LOST EVERYTHING./ GOD I'M SORRY MY WIFE LEFT ME FOR THE GARDNER/ GOD--I'M SORRY MY MAMA DIED //// BUT I KNOW IF I START PUTTING MORE IN THE COLLECTION PLATE, AND GOING TO CHURCH EVERYTIME THE DOOR OPENS, AND JOIN THE CHOIR, AND TEACH THAT SUNDAY SCHOOL CLASS, AND TRY REAL HARD NOT TO CUSS WHEN I STOMP MY TOE----THAT YOU'RE NOT EVER, EVER, EVER, GONNA LET ANOTHER BAD THING HAPPEN TO ME IN THIS LIFE. AMEN.
God is not mocked ( that's a scripture folks---one that just went through some churchmember's mind.) And God IS NOt mocked. Yet so often---the depressed, the emotionally or mentally or psychologically ill , ARE.....!!!!!
I will continue this soon. But with this as food for thought, I'll end part one here.
With absolutely no offence intended to anyone...Sincerely and respectfully, Lonnie Ray Fowler, On Social Security Disability for Depression, Son of A Paranoid/Schizophrenic mother ( now deceased), Son of A Sailor medically and honorably discharged from the United Staes Navy following Pearl Harbor, for A Nervous Condition ( now deceased ),; Grandson of two grandfathers I never met because they both committed suicide before I came along; and little brother of a man with Personality Disorder who died at the age of 55 in a nursing home.
Well gotta go now---gotta snap out of it, get a handle on it, think happy thoughts, write a check to the church, confess all my unconfessed sins, and eat something before I shrivel up and die .
Part 2, soon.LRF


Comments: 60
I do hope things get better, but I know that you can't change it. Medicine and or time might help, but there isn't a lot you personally can do. Just like I can't heal my Lupus, fibromyalgia, blood tumor or mgus. People can't see those things either and I look healthy.
Just know, you are not alone, even when you want to be.
And yes, we have illnesses that can't be shown to others on a x-ray, or catscan, therefore people brush them away as not "real" illnesses.
I do hope you are seeing competent doctors and getting adequate therapy.
Read up folks, its time to educate yourselves on this dreaded illness. There are alot of us out there, more than you would know; or probably care to know.
Great editorial!
Thank you for bringing to light the very misunderstood world of mental illness
As CA put it above; God Bless you and yours.
Lonnie, that was a great editorial - just great!
if it makes you feel any better I once frog walked a missionary to the property line and threw him in the street..
Lloyd
I would not go that far.
I do feel for you Lonnie, and hope you are feeling better soon.
I try not to let the lives of my family elders temper mine.
And I Never Ever bless people or say Blessings.
I don't think that is my right.
But I do pray for them to feel better.
Keep venting--I think it helps!
You're right, Lonnie. Too many people are ignorant about bipolar disorder, panic attacks, SAD and other forms of depression. Even our own family members, who may carry the same genes, think we are simply "weak".
Clinical depression is not the same as being disappointed or blue due to a specific event. It is a medical condition that requires treatment.
My Mom also is bipolar, but without diagnosis or treatment. She was verbally abusive and all my siblings have difficulties because of that. I know what it is to live with it as well as live IN IT.
Being a Christian makes it doubly hard. My daughter took a semester introductory course in Christian Counseling last semester, and she read in her book that one of the difficulties we have to go through as believers is guilt because we believe we should NOT be feeling things like depression.
It will take several more decades, I'm afraid, for the stigma to ease. Mental illness is something many people just can't relate to. Sure they know about chemical imbalances and brain chemistry at least to a small degree, but in our minds we just don't "get it."
I have found an understanding and empathetic community here in Gather, when it comes to the "invisible illnesses" such as depression, anxiety, mental illnesses, PTSD, invisible diseases such as fibro, and so many others. So you are in the right place.
Finding Gather has been one of the best things to happen to me in a long time. We understand how writing can help, too! So keep writing, Lonnie. You've got friends here.
Aesop for Today, February 13
Once again, thanks for a good article....S
Thanks for this article, and if you are not already a member, please check out NAMI (National Alliance on Mental Illness.) There is a great need for someone with your heart and skills. Here's a link. http://www.nami.org/
GOD BLESS YOU
I am overweight and I run into so many people that are rude when I use a store scooter. They think that I use them because I am heavy. Despite the cane I have and use. They see fat lazy woman. Not a woman with a rod and screws in her left leg and fibromyalgia, pulmonary problems from 1988 from being exposed to something at work. This month by a miracle of God, I am getting my own scooter and an electric lift for the back of my car.
I can see that we are like minded. (see the book of job) God said job loved him and was a good man and Satan says" well, if you take all he owns, he won't love you"...so God said "go ahead test him". Job still loved God, so Satan said, "well he still has his health", so God said go ahead test him, he'll still love me." What did job's wife say? "Curse God and die!" What did his friends say," What ever did you do, you must have done something for God to punish you!" This kind of sums up what happens sometimes.
I have many diseases and people just don't get it. Except for my limp People have no clue. I have heard it was in my head, my weight and my age when I was 36...I know exactly what you are talking about, I am on celexa, I have diabetes and fibromyalgia, breathing problems, etc. One of my sons has epilepsy. When my mil was visiting years ago, my son said he needed to lie down. He was on 1,000 mg of depakote. I asked her if he could lay down in one of the bedrooms of her rented apt. She said no. I told my husband, time to go and we left. Later she said she forgot he had epilepsy...
Thank you for contributing to Gather Writing Essentials Tuesday Spotlight
I can do nothing for you, my friend, and that pains me the most, except for pray and send my warmest regards....Empathy is such a terrible gift to have....
You are not alone.
You have many gather friends who care about you ; )
My thoughts and prayers go up for you and yours.
I am so sorry for your suffering. I will keep you and your Family in my Prayers .
I don't think I've ever known anyone medically depressed, but then it's not something one would tell the world. I promise to be more careful in the future.
I agree that people think there is some kind of generic bandaid to help. Get happy. Go to church. Just stop whining. What really helps is to make these people feel useful and a part of everyday life, just like people suffering from physical ailments such as cancer and diabetes. Everyone needs to feel needed and wanted not shut out, feared or useless. We really need to educate ourselves and open our hearts when it comes to those suffering from emotional and mental illness. Excellent post.
Stacey---thanks so much as well. When you consider the people in your life who suffer from these things--please notice this as you do: THERE IS A FINE LINE BETWEEN GENIUS (or creativity ) AND INSANITY. I know--I have walked that line and have fallen, from time to time, on either side.