Daily Whine and Shine - October 19, 2007

I didn't get up very early this morning. I did wake up at 7 am as I usually do (still haven't figured out what wakens me), then went back to sleep again for a while. We had a rough and late night last night. Our dog didn't like all the alarms going off for storm and tornado warnings. We didn't have any bad weather here. At one point the weather man swore that we were getting really hard rain. I think what he was seeing was above the clouds and didn't reach the ground. Same with the tornadic clouds.

Great idea! We have an overcast day here today also.

I am sorry your night was so bad last night but it is great to know that you have the warning alarms when bad weather gets close to you all. I thought lots about wghat you posted for me yestersay on the thing that is a exstention of the daily whine thing. I do not think I would have titled it quite like you did bewcause i feel we in the group are a bit more to each other than that. i mean no harm but we I think try to lift each other out of our storms of life. and as you said aboiut me yesterday I am no vegatable and i thank god for that but i do think it is a grand thing that I have a place i can come to and know that others understand my fustrations and understand why i feel my life has hit rock bottom. The bad thing is I thought to hit rock bottom you had to be a drinker and trust me thatv is something I have not done in I have no idea when. You have to addmitt that this is a side of me I am not used to. And not even sure I even like. I do not mean I am not proud of the fact I do not drink any more. i just mean the unsure of myself side of me is what I am not liking much.

Things are better today. I just need a pot of coffee instead of a whole I.V. of caffeine. My finace got to sleep last night, so I already told him that he's the one getting up with the baby tomorrow morning so I can get some sleep. Ahhh, sleep. That sounds so warm and fuzzy right now. Anyway, I'm looking forward to this weekend, so today is a good day. I hope everybody else is doing better today, too.

Angela, it's okay, I think, to have down times. Everyone cannot be on top of the world all the time. And we shouldn't have to fake it!

I agree Marilyn. If we didn't have down times how would we learn to appreciate the up ones?
I'm not too bad today, with the exception of no sleep. We all know that sleep is something we get too little of and I have an extra helper to keep me awake.
My AC unit leaked while I was at my sisters week end before last and I found a 'swimming pool" in my kitchen when I got home. I have wood floors. I called the ins co. and they sent some ppl over to work on it. Now I have 3 HUGE dehumidifiers going in my kitchen. It sounds like a train going thru my house.
How do you make people understand what noise can do to you? I'm going nuts here. I'm in a room as far away from my kitchen as I can get but it's still there. Then sometime in the night one of them started making a noise like a GIANT hornets nest. I was up most of the night because of the noise. It's like chinese water torcher. (I know that sp is wrong but my brain won't let me spell it right)
The ins co said I'm covered to go to a hotel if I need to but I can't go to a hotel because I have no credit cards or debit card. When I told my ex, my daugh, and my sister they all said, just go upstairs in the guest room. And my sister has FMS!!!
I wish they could understand that sometimes noise is too much to take. And this is constant. They're going to be here for THREE DAYS!!
I'll go bonkers!!!

I think we need down time too. nuts would nit be the word if we were o be stressed all the time!

Oh, Sandi, I cannot imagine. We are more sensitive to noise - and to touch and to smells.

Oh, and Angela, about the title? Frankly, someone sent me a message about how all of "us people" keep complaining. Well, yes, we do sometimes. Here we can do that, so we can put on the smile for our families maybe.

I spent years not complaining. Even now when I do, some of my relatives say, "Well, I hurt too. It's called getting old." No, this isn't about getting old. My parents didn't start complaining about old age aches and pains until they were in their 70s. And they didn't hurt 24/7.

Hello everyone.I am new here,but I have been reding the posts.I think this type of place is a good thing,because unless you have a cronic illness,it is almost impossible to understand,I have Lupus,but I have been reading some posts on fibro and I am wondering if I could possibly have that,too.A lot of the symptoms sound alike,and lately I have been feeling a lot more pain.It seems as if one side of my body is just turning on me.I am going to try to get to the doctor tommorrow,but I must be honest,I don`t go like I should. One reason is no health insurance,but I just don`t like to go.Is this group just for fibro sufferers?Thanks,Linds

No, Linda, not just fibro folks. Anyone with chronic illness (anyone, for that matter) is welcome to come and vent and share. I do have two groups that I started here. One is Fibro Friends, the other Invisible Illnesses.

There probably is some cross-over with Lupus and Fibro. I have a good friend in TX who swore that I had Lupus for years before I was finally diagnosed with fibromyalgia.

Seems like the last few years my down times are more than my good times and i hate that. I have been told I am on my pitty pot and just feeling sorry for myself and maybe sometimes I am but I get so tired of having problems no onew is willin g to help me fight to change. i think that is why i have never got over my grandmas death. I think it is when she was around that my life seemed to have a perpose she helped push myself and my mom into making the best life I could have even if at times i was put in a creek in a back brace and she was scared the whole time i would hurt myself, even yelled at mom that I was going to get a cold in summer and catch my death but in the back of her mind when I got older she addmitted later she knew I had to be like everyone else or she knew I would just give up and die sooner. At times like now i wondere if that is not what the medical perfession is wanting me to do when they are not helping me when they know they should. At times i think you might even feel that way with your own medical problwems and question the same thing in yourself.

Well, like you said before, Angela, if they tried out your life for a while, they might understand the pitty party.

I'm probably going to shut down again soon. Guess it's time for a nap. The brain fog is creeping in and my eyelids are getting heavy. Grrr.

it is bad to think it or say it but even my grandma would also think ans say it is as bad to think it as it is to say it so I am going to say it anyway but the way I see everyones problems and illnesses and how we are all gettinbg done by others because of them at tikmes I wish that some had to live half the kind of life I do to better understand what it is I deal with on a day to day basis. Grandma would also say if I have nothing nice to say i should not say anything but the way I see my problerm right now is I am tired of sweeping things undex a rug and not getting no place. It is not fair to me. Wheather my additude on this is liked by others or not it is my feelings and mine alone to put up with and be honest about. if it was anyoneelse i am betting they would be yelling louder than I am about my courant problems if it was them don't you think?

Angela, I answered your post on yesterday's Whine and Shine. Not sure you saw it. I still don't think we're communicating about the Center for Independent Living Centers. They're not assisted living centers, which, by the way it still doesn't make sense that because you can't get yourself out of the chair that you'd not be able to be there. Jason Mitchner, I'm betting, needs help.

Anyway, the CILs all over the country provide assistance to anyone who is disabled. They helped me in Midland, MI. Here in Cincinnati, the woman who was in charge of our fibro group went to work there. They have both paid workers and volunteers who can help find services, products, educational opportunities, programs, etc. for people with disabilities. At the one in Midland, for instance, they had 6 computers set up for people to learn to use - no charge. For me, they drove me to a job appointment and set up someone to go to the work place to see what accommodations could be made for me - longer phone cord so I could walk around unsted of sitting all day, a stool under my desk to put my feet on while I was sitting, etc. All of the suggested things had to be provided by my employer, because they were not unreasonable. (I lost that job when I had heart pains and was hospitalized. In training you could not miss work. Period.)

Here in Cincinnati, they have helped a bunch of disabled people take art classes, set up a workshop where they can paint, and arranged for their work to be shown in galleries. But they also help with practical things - like discovering what services are available in your home or to help a person get out into the world and experience life.

I did shut down again, but not until after hubby got home from work. About 5:30-9ish. Feels like I'm trying to get sick on top of the usual aches and pains and fatigue. Grrr.

As I posted on your thing on this on the day 18 post of this I think thev problem I am having is the states rules on things in different states seem to vary from what i am getting at my end on what they are telling me but as you stated about Jason my bet is he can use a lift to help the place with him well I mean they are using it on himm to help him where as I am not able to use one bacause of the way my back is twisted with the rod in my back that I have is causes the rod to poke through my back to use it and causes me to get a bad pressure sore when we use it the rode slips and pokes thriough the skin leaving a open wound.