MS diary for June 6th

I guess the main thing I am doing right now is to find my side of normal. Truly I have no idea at this point. I can be feeling great one day and then feel like shit the next.

I'm tired today. Really really tired. Like the kind of tired you get when you move into a new house...you have been working all day...carrying boxes...and it is late at night and you finally collapse. Or the kinda tired after working two jobs in one day. Or the kind of tired you get from running a marathon in the hot sun all day. But I haven't done any of these things today or anytime recently. So I am just tired for...no reason.

The sorta good thing about feeling so tired is that I lose my gumption to worry or get angry about things. Setting fire to the house are you? That's nice. You painted the cat orange...great color. You sold all my jewlery on E-Bay...good for you! Now just let me rest here...Zzzzzzzzz

I do worry that this tiredness will be a permanent part of my life. When will I feel the zip in my zippitydoodah? Will I be like that dormouse from Alice in Wonderland who was always falling asleep mid-sentence and mid-story?

Whatever happens I will adapt. I always do. It is just going to take time to figure out how this will be for me.

In the meantime...I declare a nap time for everyone...just so I don't feel so out of the ordinary.

I will see you when I wake up. Sweet dreams everyone.

Comments: 14

flit . Jun 6, 2007, 5:02pm EDT

Happy dreams..... and I hope you have an incredibly restful sleep.

I would guess that some of the exhaustion is as a result of the emotional turmoil of finally having a diagnosis - particularly on top of having so much already on your plate.... and that part of it will get better with time, even if you will still have issues with fatigue as a result of the MS itself.... it won't always be this bad.

any luck re: getting into the neurologist?

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♥kyra D. Jun 6, 2007, 5:08pm EDT

Sweet dreams sweet lady and big (((hugs))) to you.

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Julie (there will always be a rainbow) G. Jun 6, 2007, 5:23pm EDT

Unfortunately the exhaustion is the number one symptom with MS. When going through a relapse, though my symptoms have always been comparatively mild, I would be so fatigued I literally could not walk through a room without becoming exhausted. I would have to sit down and rest.

It's important to get in to a neurologist and see what can be done for your fatigue. There are some decent medications for it. In fact, I was on something for a while which did such a great job that I couldn't sleep at all. Fortunately, mine was an unusual case.

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Debra H. Jun 6, 2007, 6:28pm EDT

(((Sync))) get some rest, things have a way of working themselves out. We are here when you are up and about.

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Sue * Jun 6, 2007, 6:53pm EDT

Enjoy your nap....

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Dee W. Jun 6, 2007, 8:04pm EDT

Girlfriend, that emotional roller coaster you've been on had to run down sometime. It was time for you to crash and burn, and you did. Give yourself a break. Goodness knows, you deserve it. Nap, order chinese delivery, lounge in a hot bath with candles, a good book, and a bottle of really good wine and then go take ANOTHER nap! What rule is there that says you must go at 100 miles an hour every day all day? And who wrote that rule, anyway?

Learn to pamper yourself. There is no reason at all that you must be at full capacity every minute of every day. Learn it not only because of your diagnosis, learn it because by God, you deserve it!

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