My nonverbal autistic son Matthew has been sick with a cough and runny nose for a few weeks. I kept him home a few days here and there since you need a note for long periods of time, so I bring him in one day - well worth it so I could get to the Mervyn's 50% off sale to get both my kids warm jackets. The weather here in CA turned quickly from high 90s earlier in the week to low 60s during the day and 40s at night.
I missed the Gas Company on Monday as I was out shopping since I had to wait all day - they said 7 am - 8pm so after taking kids to school at 8 am I went and got home at 8:40 and note said Gas Company was there at 8:27.
But it was so hot I decided it was not that bad. Now I have not called for another appointment because of the coughs and I have asthma and don't want that smell of the gas heater in the house and then having windows open.
Not to mention the current issue of Family Circle I was reading the other night and it had an article on carbon monoxide that occurred the first night the gas heater had been turned on. That same nite our local news reported a similar story, so I have two little Holmes heater fans instead to be on the safe side.
Today it was in the 80s and will be for a few days so the windows were open again. So we were out and about at the store Friday and had to park on the other street as ours was filled. A few times in the past Matthew has run the other way toward Nicholas's school and the gate to get into the playground. This has happened when we picked up Nick and had to park on that street and then he ran, but we knew where he was going and could catch up to him.
This time I unhooked him from the seatbelt and reached in to get the two frozen item bags and was going to get a bag from the front seat and grab my purse when I looked and he was gone. I tossed the bags back and left the doors open but got my purse (It's a coach bag I did not want to get stolen), and took off coughing after him.
He was past the gate as it was not open due to school being in session so I was not sure where he was going or what would happen as he got to the end of the street. I screamed, gasped for air, coughed, wet my pants, sneezed and coughed between yelling stop and his name over and over with mny hoarse voice.
No one was in sight and no cars. I had seen a guy come out from a driveway two doors from us that I never saw before and turns out he was still walking on the other side and heard me screaming and saw me running and crossed the street and grabbed my son and held him there until I caught up.
At this point I thought I was going to pass out and figured I soaked through my pants, needed my asthma spray and between my gasps thanked this guy and said my son was severely autistic and just ran from the car.
I have no clue or recollection what he said and then he was gone and I was holding Matthew's hand. I was contemplating sitting on the sidewalk to catch my breath, but the kid was laughing thinking this was fun.
I barely made it home and had to change clothes and my shirt since the weather was getting warmer and held onto my asthma inhaler taking puffs. Matthew was in quite the giddy mood laughing and I told him it was not funny in my loud gaspy voice.
So today we head out to get a few things and had to park again on that street, but since Matt loves to shred newspaper and we had the Sunday paper I thought it was safe to grab the bag and purse plus Nick was there.
Nick started walking toward the end of the street since we were close to it and our house is around the corner, when all of a sudden Matt took two steps and had this look on his face like I am going to run. I screamed some profanity and was able to run a few feet and catch him before he was off. He was laughing again thinking this was funny.
Earlier this evening I was telling a neighbor across the street toward the end of our street about what happened and said I had seen her talking the mailman on the other street since her property leads to two streets and she said I really need to get a cell phone. I do plan on finally joining the ranks once I get the income tax refund next year as Nick goes to middle school I feel we both need one.
So she says that I need a cellphone so I can call her when this happens so she can go help. I said I doubt I could stop from running, screaming and gasping for breath and then dial a number and talk while running. She then saw that it made no sense.
I came up with an idea though. I hooked up my autism whistle - purchased from http://www.buttonsandmore.com to my keychain and tried it out a few times and even blew it into Matthew's face when he came running into the kitchen.
Not sure it will work but I told the neighbor if she hears the whistle that means Matt is on the loose and start running.
At the end of the street he was running is the school parking lot and since it was 11:30 someone could have been leaving for lunch. It is also below Nicholas's classroom and he goes to lunch at that time and I can imagine what would have happened if he came out to see his brother running past his school with his classmates in tow.
I think he might have been going to find another way into the playground, but since we recently had an emergency IEP at his school that I called for since he was leaving his classroom and running on the playground before heading to the gate. We needed to change the behavior support plan, but they think they have this behavior covered now since the aide changed her break and lunch times.
He is ten years of age and nonverbal so not really sure what he is thinking, but the teacher had said the same thing ended there with him laughing thinking it was a game. She said that is why at first they did not go after him, but luckily another Assistant Principal was at the gate otherwise he might have been on the street.
I need to find out where he is running to.........


Comments: 18 ( 1 removed by Bonnie Sayers )
Maybe to him its just that a game . maybe the game is that he likes to be chased like TAG ....
I am exhausted after reading (and re-reading parts) of this. My good woman, how do you do it? I am sitting here shaking my head a\in bewildered amazement. It may seem hollow or shallow (not my intention), but all I can think to do is pray...for you especially, and for Matthew and also Nick. I feel so... helpless...
I want you to know how very much I admire you. I am impressed that you are able, at times, to "read" Matthew's eyes... I think that is your best bet on learning where he is running too.
As for the cell phone idea... don't be too quick to dismiss it. I'm sure money is tight, but I would not want my wife or daugher to be out and about anywhere without one, and you can get one relatively cheap. A lot of department stores now sell cell phones that are pay-as-you go. The initial phone is $30-$60, then you buy time.... so you are actually paying ahead for minutes then using them up. There is no service contract, no monthly charges. I think you need a cell phone for emergencies. Between my two marriages - when I was poor and living very simply - a cell phone was my only phone. I would probably still do that, except my wife needs to have a fax number for her business.
One more point about cell phones (and then I will stop pushing that idea): you can get one that allows you to store the most frequently called numbers (like your neighbor) and all you do is push that number, it dials it for you, and then just yell - breathlessly if necessary - what you need. You can program in emergency numbers, neighbors and family - whatever you want - then just memorize what number is for what person.
Hang in there....I wish I could say more...God bless you all. ~ Jim
But since the gate is closed during school hours and on weekends he keeps going, so I am hoping it is to the other gate near the parking lot where we wait for Nick each afternoon.
There is the lake down the street where people walk around, but they bring dogs and sometimes it smells bad and we used to do 2 laps every weekend day, but since we both were sick we did not. Whenever it looked like he was needing to get out I would take us down there, so now looks like we will have to do that again. It should be in high 70s today so maybe mid morning we can try a few laps.
Thanks Susan for the tip on the inhaler using it before I run. We live in an area that is either singles as this is a new trendy spot for them or spanish speaking families, so we really do not know many in the area even though been here 8 years.
Thanks James for the feedback on cellphones. I do plan on getting the pay as you go kind, but in my area people are always on the street or front yard using them as we cannot get signals here for some reason. No one can ever use one in my home so guess I have not missed out on much. We do have walkie talkies we used when at sea world.
This may seem harsh, but you have to insure his safety.
Now....talk to the track coach. This child may very well find a niche where he is not only comfortable, but even may be considered a real asset. If you can develop a relationship and he's fast enough, which it sounds as though he may be, he may well be viewed as a very desirable person to have on the team. This will not only help develop his social skills, it will open doors for him that might stay shut forever. The other team members will see him as a "bud" and it may well help in ways you would never think of.
I also think since he was home sick all week that he did not get out for recess twice a day like at school and passing his old school on the way home and parking on that street he just bolted to go to the school like he has done in the past, but since it was 11:25 AM the gate was locked and that led him to continue down the street, otherwise he would be at that playground running around it - well skipping and smiling along.
I have thought about special olympics and need to look into that again. Thanks to all for commenting and your ideas.
LAURA
to have the freedom he seeks
Not knowing just what or where
but might be thinking its treats.
Maybe its the space
he is trying to run to
What ever, I'll keep on
praying for you.
I have a five year old son with ASD. He was on the moderate spectrum when he was diagnosed at 2 yrs old. When he was 2-3 years old, he used to always run away. And of course I had to chase him at the mall, street, park, parking lot, church....Like Matt, he would be laughing because he thought it was a game when I caught him. I mentioned this problem to his teacher in early childhood and I asked her to make my son a simple social story with pictures about not running away. I read it to him everyday especially before going out. I did that for a few weeks and it worked! Just a suggestion, maybe it would help to make Matt a simple social story with pictures about not running away and read it to him everyday until he gets it. Does Matt have favorite toy or activiity like wacthing TV? Another suggestion is to take away his favorite toy or activity for a day each time he runs away. Please remember to explain why you are taking his favorite toy or activity.You'll also need pictures to do this. I do this to my son ---if he doesn't eat or "misbehaves", I take away the things he likes like playing on the computer, toys or books, TV, etc. I had to be firm and consistent that if he does not listen or obey he would "loose" all his TV, computer, books, toys and even his going to Subway (he likes turkey and cheese sandwich). Be strong and hopeful, I believe in prayers to God. After a lot of hard work and prayers answered, my son is a lot better now. Do you know what I pray for my son everyday? I pray that he will have good health, peace and happiness and MANY GOOD FRIENDS!I sometimes pray for a miracle that he'll be healed. Remember Matt is given to you because you are the BEST MOM who can take care of this very special and precious Child.
God bless,
Michelle
I have also heard from my dad about how he has met people who have a hard time controlling their kids and he feels for them as well. He recently met a woman who has no arms, due to a disability yet she has 3 children and is able to control them somewhat. She has verbal commands and ways of controlling them it truly is remarkable even though she has no hands.
My dad cries when he has to leave her, because she thinks he is rejecting her. She doesn't understand he has a life as well and is very busy. He wishes he could help her more. Well I hope this helps to put it in perspective. My dad and mom would probably be happy to help or provide resources to help. Just email my dad and check out his site: www.soulcare.org
Well anyway let us all remember to pray for those who are on the road and in the air, since the stress and risk is very high now that everyone wants to arrive on time.
I hope you will all check out my article Risk of Christmas, because it speaks about what christmas is all about. I wrote it after hearing the sermon my pastor gave on Sunday. It is his sermon with a bit of my notes as well as a response by me. Also I included links to all the songs we played, because they were truly special.
NWJ Keep UP the good work and God bless (+=-)
You've got some great comments here. Your article left me breathless and grinning..... I can just see the glee in his eyes as he runs and finds his joy. Remember the inhaler before you run advice.... it's helped me as well.