It happened again yesterday. I was out with a new friend, and before going to lunch she had to go to an eye appointment, so I suggested that since she was having a hard time finding a parking spot that I did have my parking permit with me. Her response was, "Oh no, we don't need to use THAT"! She found a spot not too far away from the front door, but still a bit of a trek for me. I tried to explain to my friend that she was not doing it for herself, but for me. I think it all was for naught though. I didn't feel like I properly explained, but I just let it go since she had other things on her mind (like her own appointment).
If anyone could see me getting in and out of the car yesterday, there would not have been a question about which one of us needed the closer parking. This is why it is so hard to live with Fibromyalgia. Each day, I feel more and more invisible.


Comments: 15
I have a mobility scooter that fits in my trunk and a parking permit - however since I have the scooter and it can get me to any door from anywhere I leave the handicapped spots for others.
My husband is learning, slowly. Last night, after a horrendous day of neck and shoulder pain, when he came in the door after work I asked him to please rub my left shoulder blade. It hurt so much, like it was on fire, and his massage hurt too. Enough to make me cry. Maybe the crying helped though. Tonight, he brought me flowers. That was sweet. It has taken him years, but I think he gets it.
I'm glad your husband finally gets it! It may be worth your while to seek several sessions of counseling so he can truly internallize how hard it is for you and what he cn do to help.
My DH had type I diabetes, another destructive and incurable disease that weakens and desttroys you while nobody can see anything on the outside. No, insulin is not a cure; it merely prevents immediate death. And yes, the strict diet is essential, despite what myths you may have heard out there. Even whe you are doing everything right, attacks of fatigue and weakness can fell you, as can awful painwhen neuropathy sets in. I hope my efforts to understanad and help made his life easier.
And I hope your husband will want to make the effort to learn, empathize and care for you.
Mary, the same goes for you! Please be assertive w8ith your husband. he may think it isn't all that serious just because you suck it up. I hope he joins you for counseling and learns! And changes his ways!
Sometimes we get odd looks when we park in a disabled spot and notice people doing a double take to check and see if we have the permit.
My son does not look disabled, but on certain days it is very hard for him to walk longer distances.
People should realize that you might not look disabled but that doesn't mean you aren't in some way